Melissa Mazur
Just a Philly girl, livin' in a lonely world…and a Luddite learning (now) to BlueSky. #LongCovid since March 2020 || Lawyer on Pause
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- Reposted by Melissa MazurPlease listen to our feedback @emendenhall.bsky.social. I can tell you care. But I’ve also learned the hard way that mind-body narratives further harm the most marginalized ill folks. Please highlight #SevereME so that we can actually make our way out of #GreatestMEdicalScandal. Gracias for reading
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Here's my take on some of the debate over Invisible Illness, the new medical anthropology book that has triggered debates and controversy. This post examines the back and forth over the chapter that includes PACE and the history of the creation of the CFS construct. virology.ws/2026/02/01/t... - Reposted by Melissa Mazur[Not loaded yet]
- The usury interest rate on #pwME energy usage is the problem. Budgeting (pacing) helps but it’s not a cure, it’s a coping strategy. We need medical treatments that remove whatever is siphoning off our energy, not gaslighting or denial of this energy theft. #GreatestMEdicalScandal
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- Reposted by Melissa MazurHi everyone, I wanted to share a research study I just launched on rest, energy, & ME/CFS, open to people with ME/CFS & medical or healthcare providers who are currently practicing or conducting research & have had at least 1 patient or participant with ME/CFS. Visit restandmecfs.com for more.
- Reposted by Melissa MazurThank you @democrats.senate.gov for voting unanimously for Senator Sanders’ Amendment to strip ICE of BBB funding. Can you please demand the Sanders Amendment as a condition to fund DHS now that you’ve successfully separated it from the larger spending package?
- Reposted by Melissa MazurWould like to point out that these are independent journalists. It’s important that they’re trying to intimidate those crucial voices.
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- Reposted by Melissa Mazurcover of The Economist this week
- Reposted by Melissa MazurDan McQuade, 1983–2026: defector.com/dan-mcquade-...
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- Reposted by Melissa MazurAlex Pretti's gun is like Renee Good's car: irrelevant to the central fact that they were murdered by ICE. ICE wants us to debate whether Pretti should have been carrying because that avoids the central fact. Pro-carry, anti-carry--that has as much to do w/ his murder as his fashion choices. Zero.
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- Reposted by Melissa MazurWatching Dispatches From Elsewhere on @jillianivey.bsky.social’s recommendation and it’s quickly turning into one of my all time favorite shows. The way I was ugly crying on episode 3. 😭 Not in a bad way, it’s just really perfect and beautiful. Ugh, I love it.
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- UPDATE: I was able to visit Meighan last week. She is grateful for everyone's support with her mold emergency. She is hoping to do a personal message soon when she has capacity. Please continue to like, share & contribute if you can 👇 Y’all are rockstars!
- #pwLC #pwME #NEISVoid @lccampaign.bsky.social founder @meighanstone.bsky.social needs our help! She’s had a recent housing emergency/mold exposure—causing unforeseen expenses/health issues. More info here.👇 Please help if you can and share with anyone you know who can assist. gofund.me/6bd94d22d
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- Reposted by Melissa MazurAnother colleague just emailed me and said she was also told by several publishers that they wouldn't publish a book on Long Covid. I was pretty frustrated by that, which is why I published so many people's stories on my blog.
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- Reposted by Melissa MazurApparently Wessely threatening to sue people writing on ME/CFS. I imagine this is the tip of the iceberg. I hope people who this happens to come out. Because this is exactly the kind of behind the scenes stuff we know happens but are difficult to gather evidence on.
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- Reposted by Melissa Mazurthe knitters too. this is the top pattern on ravelry right now
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- Reposted by Melissa MazurAvoid Covid to preserve your brain
- Reposted by Melissa MazurRecent research shows blood from people with ME/CFS and Long COVID directly harms healthy muscle, reducing force, stressing mitochondria, and causing structural breakdown. Results implicate blood-borne drivers of muscle weakness, exertion intolerance, and PEM. 🔗 doi.org/10.1088/1758...
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