The usury interest rate on
#pwME energy usage is the problem. Budgeting (pacing) helps but it’s not a cure, it’s a coping strategy. We need medical treatments that remove whatever is siphoning off our energy, not gaslighting or denial of this energy theft.
#GreatestMEdicalScandalI understand more mild in illness and financially privileged folks can rearrange life (more relaxed work, gardening) and find meaning etc. I was able to do a lot with mild ME. Now I’m trying to pace & crashing for sitting by my grandma in her possibly last days. Now I’m running out of savings.
