Unremarkable Me
Health and Wellness
EDS & hEDS Awareness
Chiari Malformation Awareness
Chronic Illness Awareness
Mass Cell Activation Syndrome
POTS
I have been fighting EDS, Chiari Malformation, Mass Cell Activation Syndrome, Scoliosis & POTS for 15 years.
- Still waiting on the new hEDS and HSD criteria? You’re not imagining the delay.Here’s what’s happening, why it matters, and what to hold onto meanwhile. #EDS #hEDS #HSD #ChronicIllness #InvisibleIllness #PatientVoices #UnremarkableMe www.unremarkableme.com/post/waiting...
- Talking to children about chronic illness doesn’t have to be heavy or frightening. Calm truth, gentle language, and a reminder that love doesn’t disappear when bodies get complicated. #ChronicIllness #KidsAndHealth #UnremarkableMe #hEDS #EDS #ChiariMalformation www.unremarkableme.com/post/explain...
- Chronic illness isn’t a journey. It’s a roller coaster with no seatbelt, no exit, and a very tired goblin holding on anyway. #ChronicIllness #InvisibleIllness #SpoonieLife #UnremarkableMe #StillHere #ChronicPain #EDS #DisabilityVoices #hEDS www.unremarkableme.com/post/the-emo...
- Doctors and patients are not opponents. We are allies inside a system under strain. Saving the NHS means standing together, telling the truth, and backing each other when it matters most. #SaveTheNHS #EveryDoctor#chronic-illness #StrongerTogether#UnremarkableMe www.unremarkableme.com/post/saving-...
- Chronic illness doesn’t come with neat story arcs. Sometimes there’s no crisis. No recovery. Just the long middle where staying alive takes everything you have. #EDS #NHS #ChiariMalformation #ChronicIllness #InvisibleDisability #UnremarkableMe www.unremarkableme.com/post/i-didn-...
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- When EDS meets menopause, your body’s thermostat doesn’t just break—it leaves the building. Hot, cold, sweaty, shivering… sometimes all at once. Welcome to the chaos! #EDS #Menopause #ChronicIllness #InvisibleIllness #hEDS #UnremarkableMe #EDS&Chiari www.unremarkableme.com/post/chronic...
- A diagnosis doesn’t stop with one person. It’s a ripple—echoing through siblings, parents, and children. The emotional math of “Is this my story too?” #EDS #Genetics #ChronicIllness #EDS&Chiari #hEDS #InvisibleIllness #UnremarkableMe www.unremarkableme.com/post/the-gen...
- Real stories. Unfiltered lives. The Unremarkable Me Podcast ‘Life As I Know It’ is coming this autumn. Chronic illness, grit, laughs, and truth—told by the people living it. Got a story? Let me be your voice . #ChronicIllness #EDS #Podcast #UnremarkableMe www.unremarkableme.com/post/life-as...
- 2026 is coming… and so is change. New EDS & HSD diagnostic criteria are finally landing. Built on our stories. Our data. This is the beginning of being seen. #EDS #HSD #ChronicIllness #EDS&Chiari #UnremarkableMe #EDS2026 #PatientVoices #DisabilityRights www.unremarkableme.com/post/the-202...
- You can laugh, cry, cope, collapse—and still get told you “look well.” That’s the chronic illness paradox in action. #ChronicIllness #EDS #hEDS #EDS&Chiari #SpoonieTruth #InvisibleDisability #Chiari #UnremarkableMe www.unremarkableme.com/post/the-chr...
- Welcome to the world of EDS & pinging—where sensory overload gets loud. UnremarkableMe.com #EDS #SensoryOverload #ChronicLife #UnremarkableMe #Neurodivergent #InvisibleIllness #MedicalZebra #Hypervigilance #EDS #hEDS #EDS&Chiari #Chiarimalformation www.unremarkableme.com/post/eds-pin...
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- ☀️ When summer hits different when your body thinks 23°C is a crisis. EDS + heat = fainting, swelling, and a paddling pool medical plan. Surviving, not thriving—but still fabulous. #hEDS #EDS #ChronicIllness #POTS #EDS&Chiari #UnremarkableMe www.unremarkableme.com/post/sun-swe...
- Floating ribs and EDS are a match made in chaos. Ever felt that stabby pop under your ribs? You’re not alone. UnremarkableMe.com #EDS #SlippingRibSyndrome #Hypermobility #ChronicPain #UnremarkableMe #InvisibleIllness #ChronicIllness #EDS #hEDS #EDS&Chiari www.unremarkableme.com/post/the-rib...
- 🤖 The NHS is flirting with AI—and for once, it’s not a Black Mirror episode. Faster diagnoses, less admin, and maybe, just maybe, fewer zebras falling through the cracks. #ChronicIllness #NHS #InvisibleIllness #EDS #EDS&Chiari #hEDD #UnremarkableMe www.unremarkableme.com/post/nhs-mee...
- When the system forgets us, EDS UK remembers. From petitions to pathways, they fight for better care for our bendy bodies and brilliant brains. 💪🦓 Let’s lift them up like they lift us. #EDSUK #EnoughIsEnough ##UnremarkableMe #EDS&Chiari #ChronicIllness #EDS www.unremarkableme.com/post/celebra...
- 🎯 SYMPTOM BINGO: The Game Nobody Asked to Play Living with chronic illness means ticking off mystery symptoms like you’re collecting stamps. #ChronicIllnessHumour #UnremarkableMe #EDS #hEDS #EDS&Chiari #InvisibleIllness #ChronicLife #SpoonieLife www.unremarkableme.com/post/symptom...
- 🧠 The Things We Miss Until We See Them A late autism diagnosis isn’t just clarity—it’s a lifeline. The signs were always there. We just weren’t taught to see them. Until we did. #LateDiagnosisAutism #UnremarkableMe #MaskedForYears #AdultDiagnosis www.unremarkableme.com/post/the-str...
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- UnremarkableMe.com #hEDS #EDS&Chiari #ChronicIllness #EDS #POTS #DisabilityAwareness #UnremarkableMe #StillHere #ChiariMalformation
- UnremarkableMe.com #hEDS #EDS&Chiari #ChronicIllness #EDS #POTS #DisabilityAwareness #UnremarkableMe #StillHere #ChiariMalformation
- UnremarkableMe.com #hEDS #EDS&Chiari #ChronicIllness #EDS #POTS #DisabilityAwareness #UnremarkableMe #StillHere #ChiariMalformation
- Chronic illness took a lot from me. But it also gave me something I never had before: time—to reflect, to reconnect, to be. UnremarkableMe.com #hEDS #EDS&Chiari #ChronicIllness #EDS #POTS #DisabilityAwareness #UnremarkableMe #StillHere #ChiariMalformation www.unremarkableme.com/post/the-goo...
- When your body forgets how to regulate itself, it’s not quirky—it’s chaos. EDS & dysautonomia are real, exhausting, and deserve more than silence.Oh and there’s more than one. #EDS #POTS #Dysautonomia #ChronicIllness #UnremarkableMe #EDS&Chiari #hEDS #Chiari www.unremarkableme.com/post/when-au...
- The NHS isn’t the enemy—but it’s not off-limits to feedback. Especially when you’re living with complex conditions. Here’s how to complain without burning bridges (or toast). #EDS #Chiari #POTS #NHS #PatientAdvocacy #EDS&Chiari #UnremarkableMe #ChronicIllness www.unremarkableme.com/post/so-you-...
- Chronic illness isn’t just physical—it messes with your mind, spirit, and sanity. Here’s how to hold onto yourself when your nervous system tries to ghost you. #ChronicIllness #EDS #POTS #Chiari #MentalHealthMatters #UnrmarkableMe #EDS&Chiari www.unremarkableme.com/post/when-se...
