A Chronic Voice
I share #ChronicIllness, #ChronicPain, #disability & #MentalHealth info from VARIOUS #perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy Open to constructive chat, will block overly opinionated people.
achronicvoice.com
- Reposted by A Chronic Voice[Not loaded yet]
- “Not knowing how much #eyesight I stood to lose terrified me. The fate of my eyesight was unclear (no pun intended) and my reactions to each moment of uncertainty differed.”: buff.ly/FSLz42u by @myblurredworld.bsky.social #VisionLoss #EyeHealth #disability #NEisVoid
- "I usually just smile and nod a la Miss Universe style, chalking it up as their way of showing concern..unless they keep insisting on you doing things their way, then I put them on the block list of my life. I dont need the extra #stress.": buff.ly/exlpPaq #ChronicIllness #communication #disability
- "I use my #routine like a buffet—I pick what’s doable based on how I feel..a 2-minute #mindfulness check-in while lying on the couch..still counts as #ShowingUp for myself. And the more I practice this, the more natural it becomes.": buff.ly/thuS6dM by @thethrivingspoonie.bsky.social #disability
- "Identifying as #disabled means I stand a chance of getting what I need. Much the way my #pain is not static, being disabled is not a fixed position, necessarily.": buff.ly/BKH71NZ via @Longreads.com / @christytending.bsky.social #disability #ChronicPain #ChronicIllness #DynamicDisabilities
- "Your eyes naturally move left-right scanning the #environment as you walk. This eye #movement is the foundation of..( #EMDR ) #therapy, which has proven very successful in helping people work through #traumatic memories.": buff.ly/8IiX1qf via dlhampton #walking #MentalHealth
- "According to Ami Belmont, MD, assistant prof of #medicine ( #rheumatology, #allergy & #immunology ) at Yale School of Medicine, many patients may unnecessarily carry allergy labels..in many cases..does not reflect a true #allergic reaction.": buff.ly/nndBMjW via yalemed #MedSky #allergies
- "One focus of the APA's roadmap is dimensionality: the idea that the #diagnosis of #psychiatric conditions should not be fixed in discrete categories, but instead operate along scales of shared symptoms.": buff.ly/1oLjtft via @Nature.com @apapsychiatric.bsky.social #MentalIllness #MentalHealth #DSM
- "Many people assume that #depression or #anxiety is a state of #mind that u can #control. They advise u to think #PositiveThoughts & "stay strong". It has a #negative connotation in Asian societies—"This isn't a real problem, please get your act together."":
- “Other large-scale studies have shown that the total accumulation of #steps across a day or week, irrespective of how those steps are attained, can provide substantial benefits across a number of diff #health areas.”: buff.ly/MskX79x via Stanford #aging #fitness #exercise
- “These patterns are unusual when compared with other wealthy nations. In many peer #countries, especially in Nordic #Europe, measures of #midlife #health and #wellbeing have improved rather than worsened.”: buff.ly/SpNsIuO via sciencedaily #PublicHealth #QualityOfLife #USA
- "I had to completely abstain from alcohol, tea & coffee that year, as even a decaf could trigger a #HeartPalpitation episode. Just about anything could set it in motion – from mild physical or #emotional strain..to certain foods & spices..& more.": buff.ly/gTwrQPe #spoonie #ChronicIllness #PSVT
- “What’s here are the tools that raised my baseline just enough to stand, breathe & start again. Not healed. Not in remission. No miracle narrative. Just a steadier floor under shaky legs.”: buff.ly/gpk5d1M by @stillrollingout.stillrollingoutdoors.com #ChronicIllness #disability #ChronicPain
- Reposted by A Chronic Voice[Not loaded yet]
- “it’s really impt to clearly differentiate btwn what we mean by #insomnia & what we mean by #SleepDeprivation, because quite commonly they actually get mixed up in places like in the media & even in scientific articles some of the time.": buff.ly/coRv5Yv #sleep via @medicalnewstoday.bsky.social
- “I am #betrayed by my very #self. This is not what I agreed to. Not what My very essence wants, desires, sets itself to do..yet no matter what I strive for, I cannot push past this blockade.": buff.ly/dAlDxVK by @chronicallynikki.bsky.social #ChronicIllness #identity #spoonie
- "My current take on #motivation & life is to ‘ #JustDoIt ’, no matter how I feel. #Purpose can come later, but #regret is always too late. It’s an investment in myself, in #hope that one day I’ll be able to enjoy the fruits of my efforts and patience.":
- “I have to remember my #SenseOfSelf is flexible. You have to look within & see your #SelfWorth ..the things you can still do, or do differently. That I can myself find new ways to be in the world.”: buff.ly/dAlDxVK by @chronicallynikki.bsky.social #ChronicPain #disability
- “When we are born, we have the #cognition of #shame. This is where it differs from #guilt, as guilt is a secondary #emotion, not a primary..Shame is meant to protect us, to keep us safe.”: buff.ly/6KVaX8s by @jenniferkindera.bsky.social #MentalHealth #trauma #childhood
- “The range is due to age (kids have smaller, less mature livers so can’t #metabolise it as fast), #genetics (people can be fast or slow metabolisers) & whether you usually #drink it (regular consumers clear it faster).”: buff.ly/ovZ4aFy via @ProfCCollins.bsky.social #caffeine #coffee #BloodPressure
- “The best #running #socks quietly stay in the background while protecting from abrasion, wicking moisture, providing underfoot comfort, imparting warmth, and, if you’re shallow like me, adding flair to your outfit.”: buff.ly/tcwL0o0 via @outsidemag.bsky.social #exercise #runners #clothing
- “When u live with #pain, sometimes taking a random rest day is not a choice & it is ok if u need to take a #RestDay bcos yr pain levels r elevated. Rest days r not bad & sometimes it’s necessary for preventing even worse pain.”: buff.ly/SPRfyZz by sarahlynn358 #migraine
- “it’s important to give your #eyes a break & focus on distant objects often. It keeps the lens elastic & the #muscles strong. He recommends spending at least 10 mins per day looking at things off in the distance.”: buff.ly/G3nM6V5 Via dlhampton #EyeHealth #EyeCare #eyesight
- "The #BloodThinners I take require close monitoring of the foods I eat. Variations in my #diet can increase the risk for #BloodClots that could kill me (which is what the title of this post meant).": buff.ly/IyAwtOo #AnitiphospholipidSyndrome #ChronicIllness #advocate
- “Predatory #journals, also called deceptive journals, are #publications that look like real #academic journals but skip or fumble important #editorial steps like rigorous #PeerReview. Their main goal is often money, not integrity.”: buff.ly/nWcxV4P via @APAStyle.bsky.social
- ““The first half of #life is devoted to forming a healthy #ego, the second half is going inward and #LettingGo of it,” says Jung. People often experience it through existential questioning.”: buff.ly/wTBu4Cc via alltopstartups #wisdom #midlife #SelfAwareness #LifeLessons
- “Your energy will be limited for a while, so #cooking can be nearly impossible. Getting meals that you can just pop in the microwave will enable you to avoid cooking a while longer.”: buff.ly/iN685Hx by @katethealmostgreat.bsky.social #surgery #PostOp #disabled #ChronicPain
- " Quality #sleep, however, is also a #catch22 situation. It’s hard to fall asleep whilst in the cruel, unrelenting grip of #ChronicPain. Where you have no say and no choice but can only endure it.": buff.ly/xkulklv #painsomnia #ChronicallyIll #NEisVoid
- “At this close-to-the-bone level, I have been cut deeply by #illness, #exhaustion & some very dark moments, but also touched profoundly by unexpected tenderness & the steady #presence of people who refuse to let me disappear.”: buff.ly/L6S7cCX by @robinboardman.com #migraine #ChronicPain
- “Perhaps the better #metaphor is not a machine being repaired but a landscape being reshaped. #Neuroplasticity resembles erosion and regrowth: some paths deepen, others fade, and #change unfolds unevenly over time.”: buff.ly/AUqdBp1 from @aeon.co #brain #science #recovery #MentalHealth
