ALK Positive Inc.
Patient-driven organization seeking a cure and working to improve patients' quality of life and life expectancy worldwide.
- An ALK diagnosis can turn your world upside down. In this community, we learn how to turn it downside up—finding people who understand the scans, the waiting, and the hope. This #WorldCancerDay, we celebrate our ALK family. 💙 #UnitedByUnique #LungCancer #Community
- 13 years after a stage IV ALK+ lung cancer diagnosis at age 15, Jake Legasse is not just living, but thriving—and even running marathons. Learn how Jake thinks about mindset and copes with uncertainty—and his advice to people with ALK+. alkpositive.org/blog/patient...
- In this clip from Cancer Nurses Today, Dr. Ken Culver shares how nurses help people with lung cancer navigate treatment and decisions. At ALK Positive Inc., we support those conversations so our community is never left to figure it out alone.
- ✨ Together, we did something extraordinary. ✨ Thanks to our community, donors, partners, and advocates, we raised $3.5M+ in 2025 to support ALK-positive patients and families worldwide. Every gift fuels hope, research, and connection. From the bottom of our hearts—thank you. 💙 #Grateful
- 🌟 Watch Our First ALKtALK of 2026! Watch the recording of world-renowned thoracic oncologist Dr. Alice Shaw, the “Queen of ALK,” as she shares the latest in ALK-positive lung cancer research and what it could mean for future treatment. youtu.be/Au-DrJ4WAq0?...
- What does progress look like for the ALK-positive community? At #ESMO25, Dr. Ken Culver shared how ALK Positive Inc. advocates for people living with ALK+ lung cancer—bringing science, real-world patient insight, and unmet needs directly to industry and researchers.
- 💙 We’re feeling the love. In-person tickets for the 2026 ALK+ Summit are sold out. You can still join the waitlist or attend live virtually — with real-time Q&As, interactive chats, and chances to win prizes, all from wherever you are. secure.qgiv.com/for/2026alks...
- Meet Sara J. 💙 A facilitator of our Multilingual Chat / Charla Multilingüe, a welcoming space for patients & caregivers worldwide—where language is never a barrier to belonging. 📅 Jan 13, 3 PM ET 🔗 Link in bio #StrongerTogether
- 👑 Dr. Alice Shaw returns to ALKtALK 🗓 Sunday, Jan 11, 2026 | 7pm ET A global leader in ALK-positive research, Dr. Shaw shares the latest science—including an emerging MTAP deletion clinical trial—and what it could mean for future treatment. 💬 Live Q&A
- We're honored to see ALK Positive’s grant supporting Dr. Alice Shaw’s research at Dana-Farber featured in Dana-Farber Impact Magazine. Funding MTAP research in ALK+ lung cancer to drive better outcomes for patients worldwide. 📖 alkpositive.org/blog/alk-pos...
- 📣 Only 18 in-person tickets left for the 2026 ALK+ Summit! Once those are gone, we’ll move to the waitlist and continue welcoming everyone to join us live virtually. Joining us virtually is free and includes live sessions, Q&As, interactive moments, and prize opportunities. We hope you can join us
- Booking your trip to the 2026 ALK Positive Summit? ✈️ Use Health Care Fares to save on flights and give back — they donate $10 to ALK Positive for every ticket booked. 👉 Book here: healthcarefares.com/en #ALKPositive #ALKSummit #GiveBack
- 2026 ALK+ Summit registration is open! Join us July 24–26 in Washington, D.C. (or virtually) to learn from ALK-experienced physicians and researchers, take part in live Q&As, and connect with the ALK-positive community. Register now: secure.qgiv.com/for/2026alks...
- They’re still here — 10+ years later. This moment was made possible by donors like you. Right now, every gift is matched through Dec. 31 to fund research, education, and support. Help us reach our annual goal. secure.qgiv.com/for/alkposit...
- 🚨 $10,000 MATCH CHALLENGE 🚨 Every donation made before December 31 is DOUBLED. Your support fuels research, education, and real hope for the ALK-positive community. ✨ Give today. Make it count twice. secure.qgiv.com/for/am-ml/
- Now Streaming: ALKtALK Replay 🎥 Jesse Boehm returns to ALKtALK to share new insights and updates on Break Through Cancer’s PowerRD 2 Cure ALK+ Lung TeamLab. ▶️ Watch now on our YouTube channel: youtu.be/Unny-4F9pq8?... #ALKtALK #ALKPositive #PowerRD2Cure #BreakThroughCancer #MoreResearchMoreTime
- 🎥 Replay now: Your Holiday Toolkit on ALKtALK available on YouTube Dr. Karen Schurgin shares honest, compassionate guidance on navigating holiday emotions, setting boundaries, managing expectations, and supporting loved ones while caring for yourself.
- When Colin was diagnosed with ALK+ cancer, the odds of reaching 5 years were just 2 in 100. Nearly 10 years later, he’s here because clinical trials made today’s treatments possible. Trials don’t just help participants. They help all of us. alkpositive.org/clinical-trials #MoreResearchMoreTime
- Clinical trials are beginning to focus on early-stage ALK+ lung cancer. Read more to see which trials are open and what they’re studying. alkpositive.org/blog/clinica...
- Now open: an independent medical education grant from Pfizer + ALK Positive supporting people with advanced ALK+ NSCLC and care partners. Focus: ALK therapy prep, side-effect management & shared decision tools. Apply by Feb 18, 2026: alkpositive.org/blog/alk-pos...
- If you thought 2025 was special… just wait. 💙 2026 ALK+ Summit registration is opening soon — you're not going to want to miss out on this one. #ALKSummit
- Good news for ALK+ patients: Cigna Healthcare now covers ALUNBRIG® (brigatinib) as of 10/1/25, bringing coverage to ~99% of commercial lives. Co-pay assistance may be available for eligible patients: www.takedaoncologycopay.com
- ALK Positive Inc. is proud to announce the 2025 AACR–ALK Positive Lung Cancer Research Fellowship grantee: Alice Tzeng, MD, PhD (Dana-Farber). Her research explores why resistance to lorlatinib develops—and how we can overcome it to drive more durable treatments. alkpositive.org/blog/alk-pos...
- This Sunday (Dec 14), Jesse Boehm returns to #ALKtALK with updates on Break Through Cancer's PowerRD 2 Cure ALK+ Lung Cancer TeamLab. Join live for the latest progress + Q&A. #ALKPositive #LungCancerResearch #MoreResearchMoreTime
- Get ready — 2026 ALK Positive Summit registration opens soon! 🔬✨ Join us in Washington, D.C. for the latest research, expert Q&A, and science that empowers your ALK+ journey. #ALKSummit #RegistrationOpeningSoon
- We proudly introduced the Colin Barton Spirit of Courage Award at the ALK Summit — celebrating a leader whose vision, advocacy, and impact have transformed ALK Positive and fueled hope for patients. 💙 Read More: alkpositive.org/blog/the-col...
- This Sunday @ 7pm ET on ALKtALK: Dr. Karen Schurgin returns to help patients and caregivers navigate the holidays with honesty, compassion, and strength. Join us for real talk, grounding tools, and Q&A.
- We’re proud to partner with @GO2forLungCancr for the 2026 Lung Cancer Voices Summit—the nation’s largest gathering of advocates, survivors & professionals. Washington, DC | March 1–3 Learn more: go2.org/voicessummit
- Together during LCAM, our community raised over $1.3M for ALK-positive cancer research. We’re not finished here; there is more science to fund and more progress to drive. Your support fuels what comes next. More research. More hope. More time.
- ALK+ research is stronger than ever — and today we can push it even further. Your Giving Tuesday gift moves breakthroughs & new treatments forward, faster. 💙 Every dollar accelerates the research patients are waiting for. Give Today
- Our pharma and biotech partners strengthen the path toward better treatments, better resources, and more tomorrows for ALK-positive patients. 💙 Thank you, Pfizer, Nuvalent, and Takeda Oncology, for helping move this mission forward during LCAM. #MoreResearchMoreTime #ALKPositive #LCAM25
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- This season, the greatest gift is time with loved ones. For people with ALK+ lung cancer—like Dana, Laura, Jordan, Jennifer & Craig—more research means more milestones, more everyday joys, more life. Every moment counts. Donate today
- This holiday season, you can spark joy and support the ALK Positive community. 💛 Our partners at humanKIND Spirit Wear are offering special shipping deals: ✨ $5 flat-rate shipping on orders $75+ ✨ Free shipping on orders $150+ humankind.shop/collections/...
- The past decade has seen major strides in lung cancer - thanks to research. But we need more. It's why Dr Jaime Schneider believes #MoreResearchMoreTime. Creative research is critical to develop new treatments for our loved ones. #LCAM
- It’s a simple wish: to see your child grow up. But for people with ALK+ lung cancer, like Amanda, Jenna, Carla, and Hope, there are no guarantees. You can help give them more precious years with their kids by supporting research. What would you give for more time?
- Great science is never done alone. As Dr @christine_lovly says, teamwork in research is turning hope into reality, bringing tomorrow’s treatments to people living with #lungcancer today. Every step forward gives patients more time. #MoreResearchMoreTime #LCAM25
- People with ALK+ lung cancer like Shirley, Rae, Eva, Rusty, and Crystal know that more time means more opportunities to live life to its fullest: more adventure, more beauty, more seeing the world. And more time means more research—to make life-extending treatments possible.
- Emily joined a clinical trial in 2017 after her ALK+ diagnosis. Eight years later, she’s still on it — thriving, watching her kids grow, living moments she never thought she’d see. 💙 Clinical trials create more tomorrows. alkpositive.org/clinical-trials #MoreResearchMoreTime #LCAM
- Alicia, from Minnesota, is facing ALK+ progression — and the fear of not having enough time with her family. More research can change that. #MoreResearchMoreTime #LCAM25
- Anyone who says getting ALK+ #lungcancer is like winning the lottery hasn't met the people impacted. It's why Dr Ken Culver believes this is what we need from research. Please help us fund a real lottery - a cure: 👉https://secure.qgiv.com/event/lcam25/donate/ #MoreResearchMoreTime #LCAM25
- Who gets ALK+ lung cancer? Anyone can. Often young, active, and healthy. Median age: 52 Half diagnosed between 20–50 All backgrounds, worldwide. If you have lungs, you can get lung cancer. Awareness leads to earlier answers — and more time. #LCAM25 #MoreResearchMoreTime
- Katherine, from Houston, TX has been living a full life with ALK+ lung cancer for six years. As a participant in the Brightstar trial, research gave her more time to celebrate birthdays with loved ones—and more birthdays of her own. More Research= More Time. Donate: secure.qgiv.com/event/lcam25...
- Cancer research has changed what’s possible for people with ALK+ #lungcancer giving more options, better outcomes & hope. As Dr @ShirishGadgeel says, let's keep fuelling progress for our lung cancer community. #MoreResearchMoreTime #LCAM25
- When Sarah from Connecticut was just 32, and a newlywed, she received a shocking diagnosis of ALK+ lung cancer. She turned her grief into action by focusing on raising funds for research—because that’s what will give her and so many others the priceless gift of time.
- When Carla was diagnosed with stage IV ALK+ lung cancer, her daughter was just 1 year old. Seeing her start first grade felt impossible — but research made it happen. Now, through a clinical trial, Carla has hope for even more tomorrows with her daughter. alkpositive.org/clinical-trials
- Bobby from Idaho dreams of watching his kids grow, becoming a grandpa, and growing old with his wife. His ALK+ lung cancer diagnosis in 2023 threatened all of it — but research brings those moments closer. More research means more time. What would you give for more time?
- Research helps drive innovation so people living with #lungcancer can live longer and better. As Dr. Estela Rodriguez says, every step forward brings hope and more time for patients. #MoreResearchMoreTime #LCAM25
- Because of research, Beth, from Ohio, was here for one of life’s great milestones: her daughter’s wedding. Diagnosed with stage IV ALK+ lung cancer in 2019, she wants more people to have the chance to experience such joys with loved ones. Join her and give the gift of more time.
