Oncogene Cancer Research
🔬 Advancing Research. Empowering Patients. Championing Advocacy.
We’re patients & families dedicated to improving outcomes for people with oncogene-driven lung cancer through education, support, and powering cutting-edge research.
- #LungCancer can turn life upside down – fear, questions, a future that looks different. This #WorldCancerDay @younglungcancer.bsky.social & OCR honour the people who steady the spin: clinicians, researchers, nurses, fellow patients, families. Who helps you turn your world downside up. #LCSM
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- We believe progress happens when patient voices, medical, research & industry come together. Subscribe to receive patient stories, practical support & updates from us, shared occasionally & with care. Join our community here: 👇 oncogenecancerresearch.eo.page/rymgx #LCSM
- We’re proud to share our first Annual Report. In our 1st year, we focused on helping our community live longer & better lives, through empowerment, advocacy & research. Thank you for walking alongside us. This is just the beginning. 👉 oncogeneresearch.org/annual-report #LCSM
- Reposted by Oncogene Cancer ResearchSome good news! 5 yr survival rates for some hard to treat cancers have increased. Liver cancer, with a 7% relative survival rate in the 1990s rose to 22% Lung cancer- 15% to 28% Myeloma- 32% to 62% This is in part due to early detection & better treatment. 🧪 www.cancer.org/research/acs...
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- For people living w #lungcancer, biomarker testing is not an abstract system, it is a lifeline. It shapes treatment, quality of life & time. It’s the beginning of hope. Pleasure to have our Chair @yvonnediaz.bsky.social represent the patient voice at @thermofishersci.bsky.social European meeting
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- A must-read for the ALK+ community. Professor Elena Klenova, a scientist w background in cancer research & education & an ALK+ patient, explains ALK #lungcancer in clear, accessible terms - from biology to TKIs. Written for patients & clinicians alike. oncogeneresearch.org/patient-publis…
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- Months for some. Years for others. More than one doctor. More than one misdiagnosis. Delayed #lungcancer diagnosis is not rare, especially when you are young & do not fit the “profile”. Help us change the narrative. Help us create more awareness. #LCSM
- 2025 was powered by our patient community, alongside clinicians, researchers & industry partners working together to drive progress. Thank you for showing up in big ways and small. Here’s to a better 2026 for all of us. Happy new year! #HNY2026
- Not all advanced #lungcancer is the same. And neither are patients. This @lungcancerstoday.bsky.social article shares a recap from Dr Mara Antonoff @iaslc.bsky.social @ascocancer.bsky.social #NACLC on surgery in oligometastatic lung cancer. Have a read 👇 www.lungcancerstoday.com/post/the-ias...
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- Cancer does not pause for the holidays. For those living with cancer, scans and worries do not stop. We are thinking of everyone navigating this season alongside cancer, and thanking those working every day to improve outcomes. Wishing you rest, love, and peace. #LCSM
- Angus Pratt was unforgettable - his large white ribbon, red toque and dry humour lit up every many conferences & events. After navigating breast cancer as a man & later EGFR LC, he found a real kinship with the #lungcancer community. He leaves a big mark on our hearts. #LCSM
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- Logan, diagnosed with stage 4 ALK+ #lungcancer age 32, thought he was protecting his son until this moment. Be sure to watch the full interview to learn about how hard it was to get diagnosed and how he’s supporting others. 🎙️youtube.com/playlist?list=… #LCSM
- #BiomarkerTesting has changed everything in #lungcancer. It gives those in our community the chance to receive the right treatment at the right moment. It's why @thermofishersci.bsky.social José Luis Costa believes in continued innovation. #StoriesOfLungCancer #LCAM25
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- Progress in #lungcancer happens when we refuse to accept today’s limits as tomorrow’s reality. As Nuvalent’s Dr Henry Pelish reminds us — let’s keep pushing science’s limits. #StoriesOfLungCancer #LCAM25
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- #Biomarkertesting helps people with #lungcancer get the right treatment at the right time. Yet too many still miss out. This video created w @thermofishersci.bsky.social is a great resource for anyone diagnosed. Help share to empower & inform more people👇 www.oncogeneresearch.org/biomarker-te...
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- Reposted by Oncogene Cancer ResearchIt’s a simple wish: to see your child grow up. But for people with ALK+ lung cancer, like Amanda, Jenna, Carla, and Hope, there are no guarantees. You can help give them more precious years with their kids by supporting research. What would you give for more time?
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- Not all #lungcancer is the same - and neither should be our treatments. Today, we can personalize care to each person's unique biology. As Dr Lauren Byers @mdanderson.bsky.social highlights, innovation is making precision care a reality. Let’s keep pushing for more. #StoriesOfLungCancer #LCAM25
- Behind a young adult facing #lungcancer, there’s often someone holding them up. For @Janclarkgirls, whose daughter Amy was diagnosed at 20, success means seeing Amy work, travel, hike & more. To every care partner who carries someone this, we see you. #StoriesOfLungCancer #LCAM25
- What brings Dr Melinda Hsu hope? Seeing researchers, clinicians & advocates advance survivorship science, creating innovative ways to improve long-term quality of life for people living with #lungcancer. Every step forward brings hope. #StoriesOfLungCancer #LCAM25
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- Every advance in #lungcancer research is more than data - it’s hope for patients and families. Mark Reale of Takeda reminds us that breakthroughs are measured in the lives they touch. #StoriesOfLungCancer #LCAM25
- Hope is the heart of research for people with #lungcancer. It's why Dr Jessica Lin @massgeneralbrigham.bsky.social says, progress happens when we all come together to push the boundaries of what’s possible. Let's keep working together to keep hope & progress alive. #StoriesOfLungCancer #LCAM25
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- Progress in #lungcancer doesn’t happen in isolation. It takes industry, researchers, clinicians & patient advocates pushing forward together. Annarita Egidi’s words remind us what can be achieved when we come together. #StoriesOfLungCancer #LCAM25
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- Reposted by Oncogene Cancer ResearchKatherine, from Houston, TX has been living a full life with ALK+ lung cancer for six years. As a participant in the Brightstar trial, research gave her more time to celebrate birthdays with loved ones—and more birthdays of her own. More Research= More Time. Donate: secure.qgiv.com/event/lcam25...
- Hope carried Kathrin when she was diagnosed w stage 4 ALK #lungcancer age 44. For more days. More memories. More moments with her son. Today she focuses on the present, celebrates the good days & sets big goals for the future. #StoriesOfLungCancer #LCAM25 @younglungcancer.bsky.social
- One diagnosis. Five different paths. @jillfeldman4.bsky.social @yvonnediaz.bsky.social Leah and Samantha remind us that #lungcancer isn't one story. It's many. It's why we need more research. It's why we need treatments to be ever more personalised. #StoriesOfLungCancer #LCAM25
- Every breakthrough in #lungcancer builds on the work that came before. Dr Riyaz Shah reminds us that tomorrow's outcomes depend on today's investments. Let's keep research moving forward for better outcomes for patients and families everywhere. #StoriesOfLungCancer #LCAM25
- Life-saving treatments don’t happen by chance -they’re built through relentless research. We’re grateful for physician-researchers like Dr Christine Lovly who push science forward. Progress happens when we stand behind research that saves lives. #StoriesOfLungCancer #LCAM25
- So many people will see themselves in Stefanie’s words. The fear, the love, the strength & the reality that living w #lungcancer is never straightforward. What makes the difference is community. No one should ever face this alone. #StoriesOfLungCancer #LCAM25
- They were storytellers, visionaries, icons. From Walt Disney to Paul Newman, Betty Grable to Peter Fonda. Each left a lasting mark on the world. Each lost their life to #lungcancer. Lung cancer doesn’t discriminate. Let's push for better outcomes. #LCAM25 #StoriesOfLungCancer
- In the #lungcancer community, we lift each other up. Every story, every connection, every moment matters. 💙 It's why we get involved - creating awareness, building community or cheering others on. What community events or moments inspire you most? #StoriesOfLungCancer #LCAM25
- A decade of progress in #lungcancer treatment shows what’s possible when research, innovation & patient care come together. Dr @tnewsomdavis.bsky.social finds hope in the next wave of targeted & immunotherapies - for more time, more moments, more possibility. #StoriesOfLungCancer #LCAM25
- Some battles aren’t visible. Jennifer lives w stage 4 #lungcancer—her body fights every day, from fatigue to painful side effects. Yet she keeps going, finding strength in love, small joys, and determination. No one should face this alone. 💙 #StoriesOfLungCancer #LCAM25 @younglungcancer.bsky.social
- Advances in #lungcancer surgery are promising, but innovation must reach real patients. As Prof Eric Lim says, we need progress in practice, not just trials. Let’s push for thoughtful access, better outcomes & options for those who could benefit. #LCAM25 #StoriesOfLungCancer
- Side effects of #lungcancer treatments aren’t always visible, but they’re real & can turn simple tasks into daily battles. These are just a few from our community. 👇 By talking about the unseen, we build understanding & better care. #StoriesOfLungCancer #LCAM25 @younglungcancer.bsky.social
- Without clinical trials there will be be no new cancer treatments. Clinical trials are also not necessarily for when you run out of treatment lines. It’s worth asking questions if a clinical trial may be your best option now. Thank you, Laura for demystifying what goes on. Wishing you the best.
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- Fatigue in #lungcancer isn’t just “being tired.” It can feel like your body has turned to stone. It’s invisible to others & overwhelming to live through. By talking about it, we push for better support, care & understanding. @younglungcancer.bsky.social #StoriesOfLungCancer #LCAM25
- Research isn’t separate from care - it is care. As Professor @drsanjaypopat.bsky.social reminds us, advancing #lungcancer research is how we deliver the best possible treatment, outcomes & hope. Support research. Share stories. Drive change. #StoriesOfLungCancer #LCAM25 @btog.bsky.social
- From every corner of the world, #lungcancer knows no borders. This #LCAM25, together with @younglungcancer.bsky.social & EGFR Resisters, we are sharing the #StoriesOfLungCancer. These not only connect us across borders, but help us push for better research, care & more time for what matters.
- No symptoms. No warning. Just one seizure. Duncan was 49 and healthy when he learned he had stage 4 lung cancer. 🎙️ Hear how one moment changed everything - and why awareness & biomarker testing matters. @edmonstone.net youtu.be/FZsbfkloPyM?... #lcsm
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- Real people. Real diagnoses. Real impact. Our Patient Voices Podcast shares powerful first-hand stories from people living with oncogene-driven lung cancer — from misdiagnosis and treatment to fear, resilience & hope. 🎧 Subscribe and listen to voices you won’t forget. 🔗 youtube.com/playlist?lis...
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- Proud to be part of this important conversation on cancer-related cachexia on today - the first ever Cancer Cachexia Awareness Day. Be sure to tune in today at 13.30 ET/1830 UK. Not too late to register: reg.eventmobi.com/ilcsc2025 @lungevity.bsky.social @cancercachexia.bsky.social 👇
- Cancer #cachexia is an urgent but under-recognised challenge in lung cancer. At @LUNGevity’s #ILCSC25, @yvonnediaz.bsky.social will join Dr Richard Dunne to highlight hope underway from @cancergrand.bsky.social Team CANCAN. Sign up 👇 reg.eventmobi.com/ilcsc2025/regi… #LCSM
- Today is the first #CancerCachexiaAwarenessDay Cachexia affects up to 80% of people w advanced cancer - not just weight loss, but loss of strength, energy & will. Help @cancergrand.bsky.social Challenges Team CANCAN & these 6 patient groups in raising awareness & driving research. #CCAD #LCSM
- Cancer #cachexia is an urgent but under-recognised challenge in lung cancer. At @LUNGevity’s #ILCSC25, @yvonnediaz.bsky.social will join Dr Richard Dunne to highlight hope underway from @cancergrand.bsky.social Team CANCAN. Sign up 👇 reg.eventmobi.com/ilcsc2025/regi… #LCSM
- Reposted by Oncogene Cancer ResearchAfter three years I feel ready to enter a new phase of patient empowerment by publicly disclosing my own disgnosis. This went live today and all good. news.cuanschutz.edu/cancer-cente...
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- Our cofounder @janclark1.bsky.social & her daughter Amy shared their story on BBC Radio highlighting why more research is vital & how our first Charity Ball on 1 Nov will raise funds for this vastly underfunded cancer. Check it out👇📷 static1.squarespace.com/static/65ca0... #LCSM
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- We’ve launched the Patient Voices Podcast: Stories & Hope in Lung Cancer! Our first episode features Kathrin from Germany, diagnosed at 44 w stage 4 ALK+ #lungcancer. She shares her journey, from unusual symptoms to treatment & coping strategies. 🎥 Epusode 1, Part 1 👉 youtu.be/48DcqhKTaXc #LCSM
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- Being diagnosed w #cancer shouldn’t mean losing your rights at work. This session w solicitor Colin Davidson of Cole Khan Solicitors, brought to you w EGFR+ UK & Roy Castle Lun Foundation covers how UK law protects you after a #lungcancer diagnosis. 🎥 Watch here: youtube.com/playlist?lis... #LCSM
- 🏅 Huge thanks to Erin & Chloe for smashing the Bath Two Tunnels 10K in support of Oncogene Cancer Research! 🩵Their dedication, love, and heart behind this run are truly inspiring—and together you’ve raised over £800 for vital lung cancer research! Help us thank them 👏 @janclark1.bsky.social
- Surgery isn’t usually offered for stage 4 #lungcancer. Steve, diagnosed w stage 4 ALK+ in 2020, believed it could help prevent resistance. After targeted therapy shrank his tumour, he fought for surgery & got it. Read his story + our patient info: oncogeneresearch.org/surgery #LCSM
