Patients with Power
Patient-scientist fighting for medicine based on SCIENCE; NOT BIAS. Taking a stand against patient abuse, neglect & exploitation. 🦾 Analysing the behaviour of doctors 🧐
- WHAT DO WE HAVE TO DO - go on a meds strike and hurt big pharma where the power's at, so they pressure the government on our behalf?? To start treating sick people as human beings and enforcing clinicians to meet their basic job requirements and ethical codes? ⚡️ #NEISvoid #disability #pwME #DoNoHarm
- If we stop fighting for doctors to have awareness of each of our specific conditions, join forces and fight for doctors to start educating themselves and listening to patients, I feel like we might actually get somewhere. ⚡ #ChronicIllness #EDS #pwME
- Reposted by Patients with PowerMany with ME/CFS and other chronic illnesses may be able to relate some if not many of these This was posted as a comment on my FB page today, but I'm not sure who created it originally. #LongCovid #MEcfs #chronicillness #hiddenillness #invisibleillness #ChronicIllnesses #Spoonies #Spoonie
- Doctors often don't go by the book when it comes to treating patients. They like to cut corners. They usually don't see the consequences of the corners they cut off. #ChronicIllness #Disability
- Can you think of any other groups that deal with extra bias in healthcare? So far I've got: People who have/are - women - not the dominant race - mental health conditions - complex, invisible or rare conditions - different body shapes, thin/fat - disabled - age, old/young - lgbtqa+ #NEISvoid
- There's nothing to stop people with #narcissism or psychopathy from becoming doctors. They're protected by the assumption that people become doctors because they want to help people. In my experience, I've found some to just like the power trip. ⚡ #ChronicIllness #ChronicPain #NEISvoid #DoNoHarm
- Reposted by Patients with Power[Not loaded yet]
- I'm too busy helping people to learn how to help them properly. - Doctors everywhere #NEISvoid
- I want to share my story of harm in the healthcare system. ✍🏻 I just have such low energy and time, and I'm pretty nervous to put myself out there like that. People who have shared their story - do you have any advice? (about the above or anything) ⚡ #NEISvoid #ChroncIllness #Writing
- I love that there's heaps of doctors making audio recordings of their appointments now. Yes, they control the audio and never share it with the patient, but the step between now and mandatory patient-accessible recording of all healthcare encounters just got smaller. ⚡ #NEISvoid
- You have to baby doctors too. Like, if you're forced to mention a mistake they made - god forbid - you have to talk about it so delicately and phrase it as if it wasn't their fault. #NEISvoid
- Just another doctor-scammer using lies to make money. If you check out this guy's linktree & website, he's making 💵 off of vaccine lies in so many ways. He'll never stop telling them - they're making him rich & famous. These people are what keep the misinformation alive. #MedSky #NEISvoid
- Art is great. You can use your art as a distraction and to feel good and to connect with others, but you can also use it as a weapon. And in these times where we can reach people's minds and hearts all over the world on social media, it's probably the best weapon we have.
- Medical gaslighting is like taking a cracked mirror to be repaired, and instead being told, “No, the glass is perfect. It’s your self-image that’s distorted.” Instead of looking for medical causes, the doctor flips reality, making the patient doubt their own perception. #NEISvoid #MedicalGaslighting
- We REALLY need this. The number of careless errors, of serious symptoms overlooked, of biased judgements made and documented in my medical notes... it's mind-blowing. And it does so much harm. #NEISvoid #DoNoHarm
