loscharlos
😎🌁🎷 #LongCovid March 2020 😵💫
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- Reposted by loscharlosThis thread shows the extraordinary work that the Patient-Led Research Collaborative (working on Long COVID and other infection-associated chronic conditions) has done, incl. scientific work that has challenged and massively improved the research that people without Long COVID do on the disease 1/
- Thank you to everyone who made our work possible this year! Here's a thread on some of the highlights from PLRC's research, advocacy and education efforts in 2025. All of this work is carried out by a team living with #LongCovid 🧵 /1
- Reposted by loscharlosThank you to everyone who made our work possible this year! Here's a thread on some of the highlights from PLRC's research, advocacy and education efforts in 2025. All of this work is carried out by a team living with #LongCovid 🧵 /1
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@thesicktimes.org is one of the only newsrooms dedicated to widescale coverage of #LongCOVID. They need our support in their end of year fundraiser. Through their support, I published two major stories this year. 1/🧵 bsky.app/profile/thes... - Reposted by loscharlos[Not loaded yet]
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- Reposted by loscharlosThis is our last news feature of the year. Help us publish more stories like it in 2026 by contributing to or sharing our end-of-year fundraiser! the-sick-times.fundjournalism.org/donate/
- Reposted by loscharlosToday @thesicktimes.org: Two companies recently debuted AI tools for people with Long COVID. Some people find them helpful for managing symptoms and following research; others are concerned about the technology. By @ravindranize.bsky.social: thesicktimes.org/2025/12/23/n...
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- Reposted by loscharlos1-min action item! At the end of 2026, Medicaid recipients will be subject to work requirements unless deemed “medically frail”. This is very dangerous for people w/ME (including those w/Long Covid ME) who get sicker from exertion. Tell HHS to exempt pwME and LC: actionnetwork.org/petitions/fr...
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- “When people asked, Why do you think it hit you so hard? it seemed to carry a tinge of suspicion. I must have done something wrong to bring #LongCovid upon myself as opposed to it being the cosmic car accident that illness so often is” @philipandrewhoover.bsky.social thesicktimes.org/2025/11/28/y...
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- Reposted by loscharlos"Remembering Alice Wong: Writer, Advocate, Friend" Steven W. Thrasher on Meeting and Collaborating with the Outspoken Founder of the Disability Visibility Project published by @literaryhub.bsky.social | art by @mollycrabapple.bsky.social lithub.com/remembering-...
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- Reposted by loscharlosSo uh. I've spent the last five years working on a book about grief, mourning, who is allowed to grieve and how, and where we go from here, and... you can now preorder it!
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- Reposted by loscharlosAlice Wong, a writer and activist who was born with muscular dystrophy and who fought relentlessly for equal rights and access for people with disabilities, died on Friday. She was 51. nyti.ms/4r9WqEr
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