The Lily Foundation
Fighting mito, finding hope
Our vision is for a world in which every mitochondrial disease patient has a voice and access to treatment, support to improve their life and, ultimately, a cure.
thelilyfoundation.org.uk
#mitochondrialdisease
- It’s #FeedingTubeAwarenessWeek🩷 Many people in our community use a feeding tube, and for those who don’t, it’s natural to have questions! Please share to your stories and help us raise awareness during Feeding Tube Awareness Week!!
- Comedy Night Is TOMORROW, who's excited?!🤣 We have 5 fabulous comedians lined up, Marcus Brigstocke, Mark Steel, Tiff Stevenson and Bella Hull - all this for just £25, what a bargain!🤩🙌 There's still time to buy a ticket!⬇️ ow.ly/MsKi50Y4UOw
- We have entered our fabulous 'What It Takes' video into the 2026 Smiley Awards, and we need YOU!🩷 For a chance for us to win we need you to vote for us ⬇️ smileycharityfilmawards.com/films/what-it-takes
- Parallel Windsor is the UK’s most inclusive fundraising festival is coming — and for the first time, Lily has guaranteed places available!! 🩷 🔗 Find out more - thelilyfoundation.org.uk/charity/get-involve…
- Pssst... Royal Parks Half Marathon ballot is now open! 🏃♀️🌳 🔗 Enter the ballot now and choose Lily as your charity 🩷 royalparkshalf.com
- We have entered our fabulous 'What It Takes' video into the 2026 Smiley Awards, and we need YOU!🩷 Vote for us ⬇️ smileycharityfilmawards.com/films/what-it-takes
- Grab your ticket today!!!💃❤️ We’re thrilled to announce that award-winning comic, author, actor and broadcaster Dominic Holland will be hosting the night — promising glamour, laughter and unforgettable moments! 🔗 Book now - ow.ly/snBQ50XZIA3
- 🎤 5th Comedian Announced - Tiff Stevenson! 🎤 Don’t miss this feel-good night of comedy with purpose! 🎟️ thelilyfoundation.org.uk/charity/get-involve…
- Take your running to the global stage and join Team Lily at the 48th Bank of America Chicago Marathon, one of the world’s legendary Major Marathons 🩷 Travel and accommodation are self-funded. Places are limited. 👉 Sign up now! ow.ly/UyPF50XZAeP
- We have entered our fabulous 'What It Takes' video into the 2026 Smiley Awards, and we need YOU!🩷 For a chance for us to win we need you to vote for us ⬇️ smileycharityfilmawards.com/films/what-it-takes
- ⏳ Early bird tickets are almost gone! Now’s your final chance to secure tickets at the lower price before they increase. Don’t miss this unforgettable night — book now before prices rise ✨ thelilyfoundation.org.uk/charity/get-involve…
- It takes courage to face mito, and Kia’s family have it in abundance. Kia needs constant care, and her parents juggle being caregivers, nurses and loving mum and dad. Donate today: thelilyfoundation.org.uk/charity/get-involve…
- It takes leadership to drive change. Liz founded The Lily Foundation after losing her daughter to mito, and her vision has driven life-changing support for families and pioneering research. Donate today: thelilyfoundation.org.uk/charity/get-involve…
- It takes optimism to live with mito... Support The Lily Foundation – donate today: thelilyfoundation.org.uk/charity/get-involve…
- It takes belief. Harry’s journey to a diagnosis was long and full of wrong turns. Years of uncertainty, appointments and unanswered questions – until mito was identified. Donate today: thelilyfoundation.org.uk/charity/get-involve…
- The Christmas Quiz Is Tonight At 7PM!!🎅 Free to join – donate if you can❤️ Find out more - thelilyfoundation.org.uk/charity/get-involve… Donate today - justgiving.com/campaign/lilychrist…
- 🎤 ANNOUNCING BELLA HULL 🎤 We’re thrilled to welcome one of the UK’s most exciting rising comedy stars to the Lily Foundation Comedy Night 2026! 🎟️ Grab your tickets now and make someone’s festive season a whole lot brighter! ow.ly/UpuU50XlLre
- Donate today: ow.ly/sSvC50XBmTJ It takes discovery. Across the UK and beyond, scientists are working tirelessly to understand mito. This Christmas, your £20 helps fund pioneering research – bringing hope to patients today and the promise of a cure tomorrow.
- We’ve entered the Smiley Awards - Vote for us for FREE today!🙂 Voting is FREE, and every vote helps amplify the voices of our community. 👉 Please vote for us today. ow.ly/wbUR50XJFT2
- Donate today: justgiving.com/campaign/lilychrist… It takes determination. At 10 years old, he lives with profound physical and intellectual disabilities caused by mito. This Christmas, your £20 can help provide essential equipment so children like Freddie can keep walking tall.
- It takes passion to fight mito, and Helen has it in every step. Donate today: thelilyfoundation.org.uk/charity/get-involve… #WhatItTakes #TheLilyFoundation #MitochondrialDisease
- HURRY — our raffle ends TODAY at noon! 📲 Text ‘LILYWIN’ to 70215 to enter! Texts to short codes cost one standard network rate message each plus any donation amount you may choose to give. Don’t miss out — your perfect London escape at the Park Plaza Riverbank could be just one message away.🙌
- Win a luxury London getaway at the Park Plaza Riverbank Hotel!👀 📲 Text ‘LILYWIN’ to 70215 for your chance to win! Texts to short codes cost one standard network rate message each plus any donation amount you may choose to give. ow.ly/eVXa50XsVgq
- 🎁 Christmas Quiz countdown! This time next week we’ll be getting into the festive spirit with Liz and Dave’s annual Christmas Quiz on 21st December at 7pm. To find out more click here!⬇️ thelilyfoundation.org.uk/charity/get-involve…
- It takes love – and Ava’s family have it in abundance. This Christmas, your £20 means we can be on the end of the phone for another family dealing with a devastating diagnosis. Donate today: thelilyfoundation.org.uk/charity/get-involve… #WhatItTakes
- 📲 Text ‘LILYWIN’ to 70215 for your chance to win. Texts to shortcodes cost one standard network rate message each plus any donation amount you may choose to give To find out more click here - ow.ly/mLwK50XpR0g
- It takes adventure to face mito, and Alexandros has plenty. Donate today: thelilyfoundation.org.uk/charity/get-involve… #WhatItTakes #TheLilyFoundation #MitochondrialDisease
- 📲 Text ‘LILYWIN’ to 70215 to enter! Texts to shortcodes cost one standard network rate message each plus any donation amount you may choose to give To find out more click here - ow.ly/mLwK50XpR0g
- It takes inspiration. Have you got what it takes to help us continue Lily’s legacy? Donate just £20 today. justgiving.com/campaign/lilychrist… #WhatItTakes #TheLilyFoundation #MitochondrialDisease
- ✨ Our second Text Raffle starts TODAY! ✨ Texts to short codes cost one standard network rate message each plus any donation amount you may choose to give 💬 Text ‘LILYWIN’ to 70215 for your chance to win a luxury 2-night break in London! To find out more click here - ow.ly/mLwK50XpR0g
- Every donation to The Lily Foundation will be matched pound-for-pound, thanks to a group of generous supporters, up to £2,250! For example 🎁Give £10 → It becomes £20! 🎁Give £20 → It becomes £40! And so on… Click here to donate today! justgiving.com/campaign/lilychrist…
- Donate today and we'll double your donation. justgiving.com/campaign/lilychrist… It takes compassion – and sometimes, a comforting hug. This Christmas, your £20 helps fund the emotional support that families like Hazel and Ivy depend on. #WhatItTakes #TheLilyFoundation
- It takes support for Bal’s voice to be heard. This Christmas, it takes just £20 from you to help mito patients like Bal be heard. Donate today and we'll double your donation. justgiving.com/campaign/lilychrist… #WhatItTakes #TheLilyFoundation #MitochondrialDisease
- Every donation to The Lily Foundation will be matched pound-for-pound, thanks to a group of generous supporters, up to £2,250! For example 🎁Give £10 → It becomes £20! 🎁Give £20 → It becomes £40! And so on… Click here to donate today! justgiving.com/campaign/lilychrist…
- It takes hope to fight mitochondrial disease. This Christmas, your £20 helps fund care, research and a brighter tomorrow – bringing hope to families like Leia’s. Donate today. ow.ly/ts1L50XyCja #WhatItTakes #TheLilyFoundation #MitochondrialDisease
- 💥 Exciting news! Double donations starts today! 💥 Donate £20 and it will be matched – turning your gift into £40, for a limited time! Don’t miss this chance to double your difference. Give now and make your generosity go twice as far!🔥❤️ justgiving.com/campaign/lilychrist…
- How can I help fundraise for Lily for FREE?✅ Well, BLACK FRIDAY is TOMORROW and every time you shop through EasyFundraising, your favourite retailers will donate to your chosen cause — and it won’t cost you a penny extra! Shop through EasyFundraising today!⬇️ ow.ly/3pcG50XmrOR
- 🎤 Comedian Confirmed! We’re thrilled to announce the fabulous Marcus Brigstocke! Stay tuned… more comedians will be announced soon!👀 Buy your tickets now! ow.ly/UpuU50XlLre
- RAFFLE CLOSES TODAY AT 12PM, LAST CHANCE!! Text "LILYCHRISTMAS" to 70215 for a chance to WIN!🔥👀 Texts to short codes cost one standard network rate message each plus any donation amount you may choose to give ✨ Closes 12pm, Monday 24th November Find out more - ow.ly/mLwK50XpR0g
- TWO DAYS TO GO!! Text "LILYCHRISTMAS" to 70215 for a chance to WIN!🔥👀 Texts to short codes cost one standard network rate message each plus any donation amount you may choose to give ✨ Closes 12pm, Monday 24th November To find out more click here - ow.ly/rNtB50XpR0E
- Our Fabulous Christmas Text Raffle is NOW LIVE!!! Text "LILYCHRISTMAS" to 70215 for a chance to WIN!⭐ Texts to shortcodes cost one standard network rate message each plus any donation amount you may choose to give To find out more click here - ow.ly/i4J650XokTz
- Join us for Goldsmiths Choral Union annual Christmas celebration — a festive evening of modern and traditional music, plus carols for everyone to sing along to! 🎄🎅 Come and celebrate the season with us! goldsmithschoralunion.org/events-calendar/chr…
- A simple hello can make someone’s day, start a conversation, or even spark a new friendship. So, we’re inviting all of you to join in! Once you’ve shared your hello, take a moment to reply to someone else’s comment, you never know who you might connect with!
- Get your Early Bird tickets today! 🎟️ Step into a world of feathers, flair & fundraising at The Lily Foundation’s dazzling Burlesque Ball, proudly sponsored by ICB Group. To find out more visit our website or click the link in our bio. ow.ly/ai8t50XplpQ
- Santa suits at the ready! 🎅 Santa in the City is back – and we want YOU to join The Lily Foundation for London’s most festive charity run! 🎁 Run, jog or walk – every step helps families affected by mitochondrial disease. 💜 ow.ly/ovmh50XpiVA
- Every time you shop through Easyfundraising, your favourite retailers will donate to your chosen cause — and it won’t cost you a penny extra! Shop through Easyfundraising this Black Friday to generate funds for The Lily Foundation⬇️ ow.ly/3pcG50XmrOR
- Great day at the LifeArc Translational Centres Annual Showcase!👩🔬 Liz and Clare attended the event yesterday, hearing inspiring updates from all four Centres and connecting with professionals working in rare disease across the UK. 🧬 #TheLilyFoundation #LifeArc
- We’re delighted to announce that Lily Comedy Night will be returning to The Comedy Store on 2nd February 2026! 🎤 Buy your tickets now! thelilyfoundation.org.uk/charity/get-involve…
- Santa suits at the ready! 🎅 Santa in the City is back – and we want YOU to join The Lily Foundation for London’s most festive charity run! 🎁 Run, jog or walk – every step helps families affected by mitochondrial disease. 💜 ow.ly/cMcO50Xkekc
- We’re delighted to announce that Lily Comedy Night will be returning to The Comedy Store on 2nd February 2026! 🎤 Buy your tickets now! https://ow.ly/WOkQ50XlLsQ
