iamals
I AM ALS is the largest community movement made up of the very people living with, impacted by, and highly motivated to end ALS. We’re fueled by urgency to find a cure and a track record of real impact.
- Follow the Cures Collective TODAY for opportunities to advocate for ALL neurodegenerative diseases: IG: @curescollective | LinkedIn: Cures Collective | Updates: bit.ly/CuresUpdates
- Find your tribe and join a Community Team TODAY @ bit.ly/vol4ALS
- We secured $313 million in federal funding for ALS in the FY2026 budget. That means more funding than ever for ALS programs through agencies and programs such as the DoD, NIH, ARPA-H and CDMRP—all thanks to YOUR advocacy!
- The Many Shades of ALS team's POWERFUL work has made strides within the ALS community—elevating the lived experiences of people of color living with ALS, connecting people with resources they need, and growing the movement along the way. Learn more @ tinyurl.com/MSOATeam
- SO, what's next? BIG THINGS. But you'll only be the first to know if you sign up for our email list → bit.ly/News4ALS
- Community, last year alone, our volunteers hosted 70 Tim Lowrey Panels—which bring virtual panel discussions from people living with & impacted by ALS to groups, orgs, and schools! Thank you to everyone who attended! Check out the full video → bit.ly/TimLowrey
- Let's CELEBRATE! The new budget passed yesterday with an additional $45 million for ALS! Thanks to YOUR hard work, ALS has more funding than ever before, and we're on the cusp of so much research progress. KEEP IT UP, ALS community!
- Thank you, Dr. Bedlack and I AM ALS advocate and volunteer Marvin Shaw, for walking us through the latest on promising ALS therapies! Tofersen is working well, but only for a small number of ALS patients. So we're pushing for progress to spread the hope. Full article @ bit.ly/ALShope
- An estimated 6.5% of ALS patients in the U.S. are Black. However, that statistic, and many others, are impacted by underdiagnosis and underrepresentation of Black people living with ALS. If you're impacted, SIGN UP for a Natural History Study TODAY → bit.ly/ALSStudies
- The CONNECT Act would increase access to care for countless people currently living with ALS. Ask your Senators to sign or cosponsor it TODAY → bit.ly/ALSConnect
