ME Association
A UK registered charity for people with #MECFS and Long Covid (and Post Covid ME/CFS). We inform, educate, raise awareness, fund medical research and campaign for positive change.
RPs do not necessarily mean endorsement.
linktr.ee/meassociation
- Call or email ME Connect for free, confidential support, information, and signposting. 0808 801 0484 meconnect@meassociation.org.uk Open: Monday to Friday: 10 a.m. - 6 p.m Thursday: Late night until 9pm Saturdays: 10 a.m. - 12 noon #pwME #MECFS #MEConnect
- 1/3: What is Sick Spoons? The Sick Spoons website is a free tool which allows you to track your activity and rest over the course of the day based on the 'Spoon Theory' metaphor. Visit the website: sickspoons.com #MECFS #pwME #LongCovid #SpoonTheory
- 2/3: "Spoon Theory was created by Christine Miserandino to explain living with chronic illness. Each "spoon" represents a unit of energy. Unlike healthy people who may have unlimited energy, those with chronic conditions must carefully budget their limited spoons for daily activities."
- 3/3: Read more about Spoon Theory here: me-pedia.org/wiki/Spoon_theory N.B. The ME Association is not affiliated with Sick Spoons and is sharing this for information only to people who may be interested.
- Medical Matters – Muscle Twitching/Fasciculations Dr Charles Shepherd and the ME Association's other advisers answer questions from members of the MEA. Q: Can muscle twitching be a symptom of ME/CFS? A: meassociation.org.uk/medical-matters/ite… #pwME
- Search the free information database Medical Matters here:
- Parliamentary Questions - Jan 2026 including: To ask the Secretary of State for Health & Social Care, pursuant to the Answer to Question 95676, whether his Department has conducted any evaluation of patient safety risks affecting people with severe & very severe ME/CFS … linktr.ee/MECFSLC.Parl...
- BBC News: Long Covid and ME patients ‘hopeful’ about Rosetta Stone study The ME Association's Rosetta Stone study has been featured on the BBC News website. Read more: meassociation.org.uk/dyyy #pwME #MECFS #LongCovid #RosettaStone #RamsayResearchFund
- Dr Charles Shepherd has also been interviewed by BBC Three Counties Radio about the 1.1M research study. Listen to the interview:
- Carers UK has announced the theme for Carers Week 2026, which will run from 8th-14th June. This year’s campaign will focus on building carer friendly communities – calling for better recognition and support for unpaid carers. meassociation.org.uk/132r #CarersWeek #pwME #LongCovid
- 1/2: When you shop online with EasyFundraising, a percentage of your purchase is donated at no extra cost to you. It’s a quick, free and easy way to support the ME Association while doing your usual online shopping. #pwME #MECFS #MyalgicE #MEAssociation #Fundraising
- 2/2: All you need to do is: 1. Go to meassociation.org.uk/easyf and join for free. 2. Install the app and Donation Reminder extension. 3. Activate your donation before shopping online and the retailer will automatically donate to us for free! Thank you for your support.
- APPG on ME announcement Tessa Munt MP has officially been appointed Chair of the APPG on ME, following the group's Annual General Meeting last week. Read the full announcement on the blog: meassociation.org.uk/wtq6 #pwME #MECFS #MyalgicE
- Nature: Population-scale sequencing resolves determinants of persistent EBV DNA "This new research... has identified 22 genes that appear to increase the risk of developing several conditions in later life in people who have caught EBV in the past." More: meassociation.org.uk/d78n #MECFS
- 1/2: Belfast Live: Fiona, a woman in her fifties who now has ME/CFS, shares her diagnosis came after a Covid vaccine, and this article also discusses the lack of support available for people who report vaccine injury. tinyurl.com/4rts4ut6 #MECFS
- 2/2: Deciding whether to get a vaccination is a personal decision, and one that should be discussed with your GP. Please also find some information about common vaccinations here: Free Literature: meassociation.org.uk/fdwc Medical Matters:
- Link to our letter on Immunisations as Possible Triggers, written by Dr Charles Shepherd, MEA Hon. Medical Adviser, in 2018 -
