Dr.rer.pol. Sabine Schwab
- This one hurts deeply. Adam Hayden helped shape how I show up for this community. His wisdom, clarity of thought and advocacy style made so many of us braver voices, better listeners, and fearless advocates. The #btsm community will miss him terribly. 🩶
- Can’t wait for this to launch tomorrow! #btsm Give it a listen, my friend Bri will be sharing her story in episode one, and her sister/care partner in part 2. open.spotify.com/episode/0RHU...
- It's been an honor and a pleasure having been able to serve the #BTSM community here, on Twitter, and on X as organizer/moderator for so many years. Even though the chats are over, the conversation can continue. Please let's keep in touch via the #BTSM hashtag. 🩶
- We are incredibly grateful for the community we have created - it's time to say goodbye to our regularly scheduled chats. With ❤️, the #BTSM chats co-founder & organizer team @thelizarmy.bsky.social @sabine-nj.bsky.social @mcintose.bsky.social @shawncarey42.bsky.social @stuartselby.bsky.social
- Honored to have had the opportunity to kick off the @the_abta.bsky.social National Conference this year. It was a huge success and great intro to the conference weekend. 💻 can’t make it to Chicago? Online participation is free! #btsm #abta2025nationalconference #braintumor
- Will I see you there? #btsm Let’s connect here or through the conference app and let’s make sure we’ll find some time to meet up. Also, join the Campfire Connections networking session at 4pm on Friday. Hosted by yours truly. 🩶
- Today is #GlioblastomaAwarenessDay.In 2021, the WHO updated CNS tumor classifications which led to me being a #glioblastoma patient.I am doing fairly well but many of my friends are not.Please consider making a donation to fuel research, it is much needed. give.abta.org/give/474321/... #btsm
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- Surround yourself with people who speak up for you, lift you up, share their knowledge, and help you grow. #sabine365
- This! Great article on #patientadvocacy by Christine van Raesfeld « Our expertise isn’t theoretical—it’s personal, hard-earned, and often traumatic. We’ve survived what others research. » open.substack.com/pub/christin... #btsm
- Chronic allergic sinusitis / rhinitis anyone? How do you manage your symptoms?
- The things we do on a Thursday night. Being a panelist for @Ourbrainbankforgbm.bsky.social (OBB), sharing my thoughts on patient power, hope, science, and politics . This event honored the late GBM superstar Jessica Morris, founder of OBB and author of “All in my head.” (a.co/d/8QnYrZg) #btsm
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- I have been informed by @mskcancercenter.bsky.social that they likely won’t be covered by my health insurance past July 1st, 2025. This is extremely saddening to hear because looking for and then trusting in a new health care team is not as easy as it sounds. #btsm
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- On this #NationalCancerSurvivorDay I’m doing the things I love to do: spreading awareness, networking, and connecting with others affected by (brain) cancer. If you/your loved one is facing a #Glioblastoma diagnosis, check out: @ourbrainbankforgbm.bsky.social #btsm
- Day 3 started out with a panel titled “Empowering Voices: Becoming a Research Patient Advocate” Bri, my #braintumor buddy with whom I’m featured on @theabta.bsky.social media kits, was one of the panelists and rocked it! #btsm
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- Meeting up with fellow #braintumor patient advocate and former #BTSM chat organizer/moderator, Jeremi Pivor, at #ASCO25 today was great. But being in the room when he got standing ovations for his #Medscape talk was the cherry on top of another successful day.
- It’s been a busy second day at #ASCO25. Off to my final presentation of the day Clinical Intwgration of Therapeutic Innovation in Glioma. #btsm
- Super interesting session on Precision Medicine in Glioma Treatment — Integration of Molecular Profiling to Inform Targeted Therapies. Voilà the 3 summary slides from all 3 panelists. #btsm
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- Honored to be a part of this community. Thanks, @thelizarmy.bsky.social for introducing me to #BTSM in 2014, onboarding me in 2018, and passing on the baton in 2023. @mcintose.bsky.social, @shawncarey42.bsky.social, @stuartselby.bsky.social and I will do our best to keep this movement going.
- #BTSM is celebrating 12 years of chats TODAY! 🥳🎉 The inaugural chat took place on May 19th, 2013. Thank you, Charlie Blotter and @thelizarmy.bsky.social for getting this movement started. We have helped + interacted with hundreds of individuals over the years. (Graphic by @stuartselby.bsky.social)
- With #ASCO25 around the corner, let's talk about #ascofashion for a sec. What are this year's trends, colors, etc? Tagging some of those who care: @fumikochino.bsky.social @michellerothy.bsky.social @jamesfanwu.bsky.social @grocquemd.bsky.social @amandabindc.bsky.social @stephenvliu.bsky.social
- What do cancer and a mountain lion have in common? Here's a piece by Caitlin Feeley (whom I met in 2015 through @firstdescents.bsky.social) on how it's like to go through cancer treatment: dreadpiratekhan.tumblr.com/post/1177584... #ayacsm #btsm #bcsm #lcsm #cansky
- I've been too busy advocating that I completely forgot to tell the world that I celebrated 11 years post diagnosis last Monday! Proud GBM (because AA3 wildtype) survivor over here! #BTSM
- How’s your Monday morning going? #btsm #head2hill
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- I love a month with five weeks. In a life with many recurring monthly meeting, this is the week my schedule is fairly open. What are you up to this week? #Sabine365
- “Ations” by Shel Silverstein
- T-10 days until my 11 year cancer anniversary! I can’t believe I’ve made it this far. #btsm
- Anyone suffering from increased sinus inflammation since #Covid? #ENT professionals: Do you see more patients with these symptoms? sabine365 #Sinusitis #medsky #
