Katy B
Myalgic Encephalomyelitis - M.E + POTS for 38 years
Donor to the UK MEcfs Biobank for 10 years & @DecodeMEstudy
Please watch dialogues-mecfs.co.uk/videos/
London, UK
No DMs please
#pwME
- The deluge of utterly horrifying news about the widespread abuse & brutalisation of young women & girls will be immensely triggering for many women & will bring up the most painful emotions & memories If this is impacting you please take care & get help & support if you need to
- Very grateful to Tim who did brilliantly But I still feel after all these years that those from the ME orgs who speak on our behalf still dont describe #ME in a way which adequately describes how serious it is & how truly horrific the symptoms are.
- "We absolutely need far more biomedical research into the similarities & differences between #LongCovid & #ME examining effects on brain, blood vessels, immune system autonomic nervous system viral persistence & 1/2 www.bbc.co.uk/news/article...
- mitochondrial function, to help identify new & better treatments" Dr Rae Duncan
- @vladvexler.bsky.social on #ME #LC In awe of Vlad's continued courage & his ability to articulate key important points about the impact of ME in a uniquely erudite way.
- @tessamunt.bsky.social @joplatt.bsky.social @georgemonbiot.bsky.social I'm sure you're all aware of this case of yet another #pwME being seriously harmed while under @england.nhs.uk care. It also makes it very clear that there are very serious problems with BACME being involved in care of #pwME
- "London hospital STILL starving severe #ME patient, Savannah — biased medical approach to blame" "On Monday, Savannah reported that the reason for this persistent gaslighting seemed to finally fall into place. A staff member mentioned Dr Gerald Coakley 👇 www.thecanary.co/uk/analysis/...
- "London hospital STILL starving severe #ME patient, Savannah — biased medical approach to blame" "On Monday, Savannah reported that the reason for this persistent gaslighting seemed to finally fall into place. A staff member mentioned Dr Gerald Coakley 👇 www.thecanary.co/uk/analysis/...
