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- Two RI abstracts accepted at @arvoinfo.bsky.social #ARVO2026 Using TILDA data @tcddublin.bsky.social they show how vision loss is linked to mental health and cognition, turning lived experience into evidence that strengthens patient advocacy and care. @nabinpaudel.bsky.social @avrilbdaly.bsky.social
- Thank you for all of your support over 2025! Our office will be closed from today, Friday, December 19th and will reopen on Monday, January 5th. Wishing you and yours a restful break over the coming weeks, From all of the team at Retina International - Avril, Nabin, Ellen, Kate, Maria and Claire.
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- Today, our CEO @avrilbdaly.bsky.social, as President of @eurordis.bsky.social, is joining leaders across Europe to push for a stronger, more connected research & innovation ecosystem for rare diseases. Key discussions are highlighting the power of ERNs. #HLMRare #RareDiseases #ERN_EYE #Innovation
- For World Sight Day this year, our priority is to #KeepPatientsVoting. We are proud to launch our campaign, Patient Voices: Deciding Our Futures. Learn more: ow.ly/s3X250X7MoU #WorldSightDay #PatientVoices #WSD2025
- Have you registered for our free World Sight Day webinar, The Patient Voice and Innovation: 🗓️ Date: October 9 ⏱️ Time: 1:30 PM UK | 2:30 PM CET | 8:30 AM EDT ⌛ Duration: 1 hour us06web.zoom.us/meeting/regi... #Webinar #WSD2025 #FreeEvent #Ophthalmology #PatientVoice
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- Are you a young person living with a retinal condition? Register today for the Retina International Youth World Conference! Saturday, September 27 at 4pm CET> us06web.zoom.us/meeting/regi... #Conference #Science #Retina #RetinaYouth
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- We're excited to attend @euretina.bsky.social! ➡️ Our abstract details: “Can large language models improve the readability of online patient education materials on retinal diseases?” 📍 6th September 2025 🕤 10:00 – 10:06 📌Speakers' Corner 18 @avrilbdaly.bsky.social @nabinpaudel.bsky.social
- Join us at @euretina.bsky.social! We will be presenting our latest work, "Can large language models improve the readability of online patient education materials on retinal diseases?” 🗓 Speakers’ Corner 18: Miscellaneous ⏰ 09:30–10:30 CEST | Dr. Nabin Paudel speaking 10:00–10:06 #EURETINA #RI
- Save the date! Our Head of Research, Dr. @nabinpaudel.bsky.social will speak at #EURETINA2025 on AI and clearer patient info for retinal diseases. - Sept 6, 10:00 CEST. #Ophthalmology #AI #EURETINA25 @euretina.bsky.social
- Exciting news! Our colleague Dr. @nabinpaudel.bsky.social will present at @euretina.bsky.social #EURETINA25 on using AI to improve the readability of online patient education materials on retinal diseases. Save the date! Sept 6 at 10:00 CEST #AIinHealthcare retina-international.org/ri-euretina-...
- Congrats to Prof. José-Alain Sahel, Co-chair of our SMAB, on receiving the @arvoinfo.bsky.social Proctor Medal for his pioneering work in retinal research. This is one of the highest honors bestowed by ARVO - and so well deserved. #ProctorMedal #ARVO #Award #RetinalResearch #Retina #Research
- Thanks to all who joined our #ARVO #SIG on #GA trial endpoints yesterday - great insights from regulators, industry, academia & the patient community. More multistakeholder conversations to come!
- Our @arvoinfo.bsky.social #SIG on GA trial endpoints is today. Join global experts + patient voices to rethink what meaningful outcomes look like. Last chance to register! www.arvo.org/education/sp... @avrilbdaly.bsky.social @nabinpaudel.bsky.social #GeographicAtrophy #ClinicalTrials
- Our @arvoinfo.bsky.social #SIG on #GeographicAtrophy endpoints is just 2 weeks away. Join us on June 10 to help shape more meaningful trial outcomes. 🔗 Register today! www.arvo.org/education/sp... @avrilbdaly.bsky.social @nabinpaudel.bsky.social @ema.europa.eu #GeographicAtrophy #ClinicalTrials
- Our @arvoinfo.bsky.social #SIG on #GeographicAtrophy endpoints is just 2 weeks away. Join us on June 10 to help shape more meaningful trial outcomes. 🔗 Register today! www.arvo.org/education/sp... @avrilbdaly.bsky.social @nabinpaudel.bsky.social @ema.europa.eu #GeographicAtrophy #ClinicalTrials
- Retina International welcomes this step forward for our community. We thank @rarediseasesint.bsky.social for its leadership in bringing together patient reps from around the world and for ensuring that our voices are heard loud and clear at the global level. #Resolution4Rare #RareEyeDiseases #IRDs
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- Our CEO @avrilbdaly.bsky.social, in her role as President of @eurordis.bsky.social, opened the EURORDIS Membership Meeting 2025 in Riga 🇱🇻 #EMM2025 The theme: Maximising our impact - Strengthening the voice of the rare disease community in decision-making. #RareDiseases #EURORDIS #PatientVoice
- How do we make GA clinical trials more patient-focused? Join our virtual @arvoinfo.bsky.social SIG session: June 10, 9-10:30am EDT. Hosted by @retinaint.bsky.social - open discussion encouraged! 🔗 Register: www.arvo.org/education/sp... #GeographicAtrophy #RetinaResearch #ClinicalTrials #AMD
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- We warmly welcome the @ema.europa.eu CHMP’s positive opinion on the first targeted therapy for Thyroid Eye Disease (TED). 🔗 Read more: retina-international.org/ted-press-re... #RareDisease #TED #RetinaInternational #VisionHealth #InnovationInSight @amgen.bsky.social @avrilbdaly.bsky.social
- We're delighted to have had such a productive few days at #ARVO2025 @arvoinfo.bsky.social this year. Dr @nabinpaudel.bsky.social & @avrilbdaly.bsky.social presented work that demonstrates our commitment to patient-driven, evidence-based innovation. So many interesting discussions! More to follow!
- Attending @arvoinfo.bsky.social #ARVO2025? Don't miss our Head of Research & Programmes Dr @nabinpaudel.bsky.social: Accuracy and readability of ChatGPT-4o responses to patient queries on AMD. 📌Large language models in Ophthalmology 📅 May 6, 2025 | 3:30PM - 5:15PM 📍 Posterboard Number: 3952 - B0489
- Productive day for us @arvoinfo.bsky.social - our CEO @avrilbdaly.bsky.social presented her work on #GA and Dr @nabinpaudel.bsky.social will present on Tuesday. At ARVO? Come find us to chat more about our work: ℹ️ www.linkedin.com/posts/retina... #ARVO2025 #ARVO #EyeResearch #Ophthalmology
- At Retina International, our newsletter isn’t just news, it’s a global connection. A place where patients, researchers, advocates, and allies come together to share, learn, and lead change in retinal health. ➡️ Read our April edition here: bit.ly/4cNCvUU. ➡️ Subscribe here: bit.ly/4cGXVmt #RetinaIntl
- Late-stage #AMD isn’t just a health issue, it’s an economic one. New research led by Dr. @Nabin Paudel @retinaint.bsky.social, shows massive costs in 🇧🇬 🇩🇪 🇺🇸, with lost well-being & productivity driving the burden. Early action matters. Read more: 🔗 www.ophthalmologytimes.com/view/economi... #DMAE
- Retina International is gearing up for @arvoinfo.bsky.social where Avril Daly and Dr. Nabin Paudel will present two important poster sessions on: - Patient-driven insights into Geographic Atrophy - Using ChatGPT-4o to support AMD patient education 📅 May 4 & May 6 #PatientPerspectives #AIinHealthcare
- Today, on @who.int #WorldHealthDay, we’re highlighting inherited retinal diseases in maternal and newborn care. Early diagnosis = healthier futures. #HealthForAll #GeneticTesting #WHO #RetinaInternational #EyeHealth #VisionResearch #Ophthalmology #ScienceResearch #WorldHealthDay
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- Retina International se complace en formar parte de Unidos en Visión 2026, que combina la Conferencia VISIONS de la Fundación para la Lucha contra la Ceguera con nuestro Congreso Mundial. 10 al 13 de junio de 2026 en Fort Worth, Texas. ¡Reserve la fecha! www.FightingBlindness.org/VISIONS2026
- Retina International is excited to be part of United in Vision 2026, combining the Foundation Fighting Blindness VISIONS Conference and our World Congress. Join us from June 10-13, 2026, in Fort Worth, Texas. Save the date! Learn more: www.FightingBlindness.org/VISIONS2026
- The Retina International Perspectives #Podcast is now on Spotify! Retina International shares expert insights, personal stories, and the latest research in inherited retinal diseases. Tune in and subscribe: 🎧 Listen here: open.spotify.com/show/39wshES... #RetinaInternational #IRDCommunity
- Did you miss #RareDiseaseDay2025 at @europarl.europa.eu? Our CEO, @avrilbdaly.bsky.social, President @eurordis.bsky.social, called for an EU Action Plan for Rare Diseases; faster diagnoses, better treatments & holistic support. Watch/listen back to Avril here: shorturl.at/wsEkw #RareDiseases #EU
- ¿Cómo se relaciona la salud mental con las enfermedades oculares raras? Nuestro último podcast con David Sanchez, @avrilbdaly.bsky.social, y Matt Bolz-Johnson, @eurordis.bsky.social, explora el impacto emocional, los desafíos políticos y el poder del apoyo comunitario. youtu.be/7d7RxQEGeHU #Podcast
- How does mental health intersect with rare eye diseases? Our latest podcast with David Sanchez, @avrilbdaly.bsky.social, and Matt Bolz-Johnson @eurordis.bsky.social explores the emotional impact, policy challenges, and the power of community support. Listen here: youtu.be/7d7RxQEGeHU
- How does mental health intersect with rare eye diseases? Our latest podcast with David Sanchez, @avrilbdaly.bsky.social, and Matt Bolz-Johnson @eurordis.bsky.social explores the emotional impact, policy challenges, and the power of community support. Listen here: youtu.be/7d7RxQEGeHU
- Another fantastic #EducationHub session: We discussed the role of patients in research & regulation, with expert insights from NCPE & @ema.europa.eu. Patients are not just participants - they’re decision-makers. More: shorturl.at/QK1mG #RetinaInternational #PatientAdvocacy #HTA #RegulatoryAffairs
- Retina International stands with @eurordis.bsky.social and @eupatientsforum.bsky.social. Weakening patient representation in CHMP & PRAC is a step backwards for patient-centred healthcare. EU Member States must uphold meaningful patient involvement. Full statement: www.eurordis.org/epf-eurordis...
- Our board member, David Sanchez, joins experts like Dr. Jaume Català & Dr. Carmen Ayuso to discuss Hereditary Retinal Dystrophies, including #UsherSyndromeType1. Listen here: open.spotify.com/episode/4XHv... #RareDiseaseResearch #RetinalDystrophies #UsherSyndrome #PatientCommunity #VisionResearch
- Nuestro miembro de la junta David Sanchez participa en el último episodio de La Ciencia de lo Singular sobre distrofias hereditarias de la retina. ¡Escúchalo ahora! 🔗 open.spotify.com/episode/4XHv... #InvestigaciónEnEnfermedadesRaras #DistrofiasRetinianas #SíndromeDeUsher #ComunidadDePacientes
- We're hiring a Postdoc Researcher to lead groundbreaking studies on mental health and vision loss due to retinal degenerative diseases. This is a unique opportunity to contribute to patient-centred research that drives real-world impact. Learn more: www.linkedin.com/jobs/view/41... #RetinalResearch
- As Co-Chair of Retina International’s SMAB, Dr. Jacque Duncan’s work in retinal research is truly innovative. Congratulations on her Oberdorfer Award in Low Vision Research. We are excited to hear more about this work at the 2025 ARVO Annual Meeting lecture. #VisionResearch #Ophthalmology #ARVO2025
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- Retina International are delighted to announce our latest publication in Frontiers Medicine #RIWC24 #Patient #Value #UnmetNeeds #Therapies www.frontiersin.org/journals/med...
