John Stainton OBE
Living with Primary Progressive Multiple Sclerosis
Medically retired but finding new roles after diagnosis in May 2022
Music fan
- www.youtube.com/watch?v=F4PT... Please share with your networks. Let's raise money for essential research.
- Saw The Last Dinner Party last week. They were excellent.
- Saw A Void as support to Ugly Ozo this week. Excellent.
- Saw Ugly Ozo this week
- Saw The Last Dinner Party last night. Quite brilliant.
- My new tattoo. Damaged myelin on a nerve.
- I am sailing stormy waters to be near you.
- From Jessica Winter's in store appearance at Vinilo Records Southampton.
- From Panic Shack's in̈ store appearance at Vinilo Records Southampton.
- Jessica Winter made an in store appearance at Vinilo Records in Southampton̈ last night
- www.youtube.com/watch?v=2CI1... My debut on YouTube,
- Another great night at Vinilo Records Southampton and an in store appearance by Those Damn Crows. #livemusic #disability #multiplesclerosis #thosedamncrows
- Record Store Day at Vinilo Records Southampton, They had sold out of the 7 inch single Come up and see me (Make me smile) originally released 50 years ago and one of the first singles I ever bought.
- Saw the great Better Joy last night, They were very good. Support Harvey Jay Dodgson an unexpected bonus. #betterjoy #livemusic
- Went tp see the wonderful Thea Gilmore last night. My first time but I have been a fan for 30 years. Spoke to her after the show and apologised for being late to the party. She is such a nice person. #TheaGilmore #livemusic #Papillon
- One wonders whether the irony of hiding and interview with a campaigner who is concerned and reduced welfare behind a paywall is lost in the i. Very pleased with the quote that those living with MS are not wastrels or ne'er-do-wells. #disability #multiplesclerosis #PIP
- www.bbc.co.uk/iplayer/epis... Available (in the UK only) for 23 days. #disability #multiplesclerosis #PIP
- www.eastleighnews.co.uk/2025/03/chan... For the third time this week I am in the news. This time as a champion of the Wessex Secure Data Environment. I do like the photo from 12-12 years ago, above Afghanistan. #research #improvedhealthoutcomes #multiplesclerosis #disability
- Saw and met Welly (well 60% of them) at the Vinilo Record Store on Tuesday night.
- www.youtube.com/watch?v=1G7a... Without the support of people like you the revolution will not start (at closing time - far fans of punk band Serious Drinking - or any other time.) #multiplesclerosis #stopMS #disability #research
- www.bbc.co.uk/iplayer/epis... Watch from 6 minutes to see my friend Phoebe Day and I talk about PIP. #disability #multiplesclerosis #benefits
- Caught HotWax making an instore appearance at Vinilo Records last night. The NME describe their new album as a blistering debut from future rock titans and they are not wrong. #livemusic
- Chuck Prophet on Tuesday night #livemusic
- Listen from 13:37 to hear a text from John in Southampton (I wonder who that is?) who updates the nation on both a Chuck Prophet gig he attended and say that as he has Multiple Sclerosis he is resting up. MS mentioned on national radio. #multiplesclerosis #disability #invisibledisability #livemusic
- Well worth a listen to learn more about Multiple Sclerosis. I am lucky not to have the uncertainty of Relapsing Remitting MS. I mourn my old life but I step forward to embrace the future and what it will bring. #disability #multiplesclerosis #nexttattoo www.thenakedscientists.com/podcasts/nak...
- It is cold but sunshine is so much better than grey clouds,
- Main act Man/Woman/Chainsaw
- Second up were Big Trousers.
- Lugnut who opened last night at the Joiners. Really good.
- Girl Scout last night at the Heartbreakers venue last night. Very good indeed. Shut out to the staff who ensure I could get access. #disability #disabilityaccess
- Eatboy at the aptly named (well yesterday at least) Heartbreakers in Southampton last night. Opened for Girl Scout. A challenge to get up and downstairs but a great venue. #disability #disabilityaccess
- www.mssociety.org.uk/support-and-... My blog piece about volunteering with the MS Society. #disability #multiplesclerosis #volunteering #stopMS #HMSS
- On 22 January, GB News presenter Josh Howie repeated a homophobic slur linking the LGBTQ+ community to paedophilia. This is offensive, wrong and unlawful. Join me and @GoodLawProject to file a complaint to Ofcom :point_down: action.goodlawproject.org/ofcom-stop-g...
- This cause is close to my heart - please sign: you.38degrees.org.uk/petitions/st...
- Reposted by John Stainton OBEFor those saying it wasn't a Nazi salute. Keep posting it. Keep sharing it.
- I got this done a year ago today to mark my participation in the Octopus Trial looking for new treatments for progressive MS. #MS #disability #OctopusTrial
- Met up with my friend Richard today. We have been putting the world to rights since 1987.
- How did I do this? Who knows. I certainly don't. #disability #multiplesclerosis
- It is certainly cold today but there are worse things than waiting for the bus in the sun.
- My favourite song today. Written some 60 years ago. I thought I knew you, what did I know? youtu.be/XsacZObJtcc?...
- One of the good things about being on the Octopus Trial is there is no shortage of great presennts. #StopMS
