Lobular Breast Cancer Alliance (LBCA)
LBCA is the only organization in the US dedicated to invasive lobular carcinoma (ILC) also known as lobular breast cancer, the 2nd most common breast cancer type. Learn more at lobularbreastcancer.org
- LBCA and Susan G. Komen are excited to announce the grant recipients of the Susan G. Komen-LBCA Metastatic Invasive Lobular Carcinoma (mILC) Research Grant: lobularbreastcancer.org/lbca-and-sus...
- The results of LBCA's patient experience survey presented at SABCS 25 show ILC patients have concern that surveillance plans won't detect recurrences or progressions: lobularbreastcancer.org/ilc-patient-...
- Meet Erica and hear how an architectural distortion caught on her mammogram led to a diagnosis of lobular breast cancer: lobularbreastcancer.org/my-ilc-story... #lobularbreastcancer #invasivelobularcarcinoma #ILCawareness
- LBCA Travel Grant Applications are open for advocates to attend 3 events May-June: Living Beyond Breast Cancer (LBBC), NBCC Advocate Leadership Summit, ASCO 26 Annual Meeting, deadline 1/19. Apply here, LBCC: tinyurl.com/LBCA-LBCC NBCC: tinyurl.com/LBCA-NBCC ASCO: tinyurl.com/LBCA-ASCO
- Congratulations to LBCA Scientific Advisory Board member, Dr. Megan Kruse on her appointment as the Director of Breast Medical Oncology and Co-Leader of the Breast Cancer Program at Cleveland Clinic. Exciting news for the lobular breast cancer community! www.linkedin.com/posts/jame-a...
- As we look forward with hope to a New Year and more continued focus on lobular breast cancer in 2026, we honor five LBCA patient advocates we lost in 2025 and celebrate their lasting contributions to ILC awareness, advocacy, and community #lobularbreastcancer #ILCawareness #invasivelobularcarcinoma
- LBCA was proud to sponsor the special session on lobular breast cancer at SABCS! #ILC #ILCawareness #lobularbreastcancer #SABCS25
- The LBCA team is excited to join together with lobular breast cancer patient advocates from all over to amplify our message to educate about ILC and press for more research at SABCS25 #breastcancer #lobularbreastcancer #ILC #ILCawareness #SABCS25
- This Giving Tuesday, stand with LBCA in support of the lobular breast cancer community. Donate today to fuel ILC research, awareness, education, and advocacy: lobularbreastcanceralliance-bloom.kindful.com #GivingTuesday #LBCA #lobular #ILC #invasivelobularcarcinoma #breastcancer
- October 15th is Lobular Breast Cancer Awareness Day! Help us spread the word about the 2nd most common type of breast cancer that may not form a lump, is often missed on mammograms, has no targeted treatments and receives less than 1% of research funding. lobularbreastcancer.org/oct-15th-202...
- LBCA is happy to see that ILC and the need for targeted research is finally getting national attention thanks to this excellent report from the American Cancer Society, we are proud that LBCA's advocacy helped make it happen! pressroom.cancer.org/lobular-brea... #lobularbreastcancer #ilcawareness
- October is Breast Cancer Awareness month and we continue to shine a spotlight on lobular breast cancer, the 2nd most common type of breast cancer that needs more research to improve detection and find targeted treatments: youtu.be/pd6cBXezbcg #ilc #lobularbreastcancer #breastcancerawareness
- Help us raise $150k for the 15% diagnosed with lobular breast cancer now, as part of our Oct 15th Global Lobular Breast Cancer Awareness Day campaign and your gift will be matched! lobularbreastcanceralliance-bloom.kindful.com #lobularbreastcancer #ILCresearch
- LBCA is partnering with SurvivingBreastCancer.org (SBC) to provide more virtual support groups for lobular breast cancer. SBC will soon offer a metastatic ILC support group. If you are interested in co-leading, register for SBC's Facilitator Training on Sept. 27–28th: forms.gle/a57G1bn8p7eg...
- We're excited that legislation has been filed in Massachusetts to make Oct. 15th Lobular Breast Cancer Awareness every year. LBCA ED Laurie Hutcheson, SAB Member Dr. Jeselsohn, and volunteers met with senators at the MA State House to strategize on the bill. #lobularbreastcancer #ILCawareness
- Do you receive our monthly newsletter? Each month we share news on lobular research, advocacy, opportunities to connect with other patients or get involved to help raise awareness of ILC. Subscribe here: lobularbreastcancer.org/contact-us/s... #lobularbreastcancer #ILC
- Meet Mary, a healthcare market researcher diagnosed with Stage 2b ILC who had never heard of lobular breast cancer. A mom of three, Mary now mentors others and advocates for better imaging, research, & awareness: lobularbreastcancer.org/meet-mary/ #ILCStory #lobularbreastcancer
- Oct 15th Global Lobular Breast Cancer Awareness Day is 2 months away! Getting governors' proclamations of the day in the US is a great way to raise awareness. With your help we have 20 in the works. If you don't see your state on our map and can help, email communications@lbca.org #ILC
- Meet Dr. Mamtani, surgical oncologist & newest SAB member! As co-director of Memorial Sloan Kettering's pioneering Lobular Program, she shares how early experiences shaped her career and explains why partnering with advocates matters. lobularbreastcancer.org/new-sab-memb...
- Help us raise awareness about invasive lobular carcinoma (ILC) and Global Lobular Breast Cancer Awareness Day on Oct. 15th by sharing your story! Patient stories are key to help spread the word about ILC. If you would you like to share your story email communications@lbca.org
- New in 2025: the National Comprehensive Cancer Network (NCCN) highlights the use of the diagnostic procedure FES-PET for metastatic or recurrent ILC. This is the first time the NCCN guidelines identify any procedure for ILC-specifically. lobularbreastcancer.org/ilc-specific...
- LBCA SAB Chair Dr. Mouabbi and MSKCC ILC program co-lead Dr. Shen, each shared exciting ILC research study results at the American Society of Clinical Oncology conference last month: lobularbreastcancer.org/ilc-research.... #ILC #ASCO2025
- LBCA is so sad about the passing of Christine McKay, she has been a force for advocacy for ILC research as a founding member of our patient advocate advisory board. We remain inspired by her work to raise awareness of ILC. ottawacitizen.remembering.ca/obituary/mar...
- Help us make this October 15—Global Lobular Breast Cancer Awareness Day—the biggest yet! Join LBCA and partners around the world to raise awareness about invasive lobular carcinoma (ILC). Create a social media reel, host an event, each action helps. Sign up here! tinyurl.com/October15thS...
- In a recent SurgOnc Today® from the Society of Surgical Oncology, experts dive into the surgical challenges of lobular breast cancer. Moderated by Dr. Weiss, with Dr. Fayanju, Dr. Mukhtar (LBCA SAB), and ILC survivor & LBCA Executive Director Laurie Hutcheson. surgonc.org/education/su... #ILC
- LBCA is offering travel scholarship grants for advocates interested in Invasive Lobular Carcinoma (ILC) education to attend the 2025 San Antonio Breast Cancer Symposium (SABCS) in San Antonio, Texas, December 9-12, 2025. Deadline to apply is Monday, July 21st: tinyurl.com/LBCATravelGr...
- LBCA Local Advocacy Team Coordinator Kathleen Moss shared her Lobular Breast Cancer journey in a new interview on The Patient Story. Watch to hear how she reclaimed body confidence after diagnosis: thepatientstory.com/patient-stor...
- LBCA launched the first in a series of training courses on invasive lobular carcinoma (ILC) for clinicians in partnership with Memorial Sloan Kettering, the first two focus on ILC imaging for general radiologists and breast imagers. lobularbreastcancer.org/lbca-partner... #ILC #LobularBreastCancer
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- In collaboration with the AACR, LBCA is sponsoring five merit awards to recognize the best abstracts focusing on lobular breast cancer research submitted for presentation at the San Antonio Breast Cancer Symposium this Dec., submit abstracts before July 9th: brnw.ch/21wSZql
- LBCA’s third Local Advocacy Team has launched in Cascadia, covering WA, OR & ID in the US! Meet the LAT of Cascadia Ambassadors in this interview to learn more: lobularbreastcancer.org/new-local-ad...
- LBCA has developed a new patient resource: Myths and Facts about Invasive Lobular Carcinoma to help clear up common and pervasive myths about invasive lobular carcinoma (ILC). Read it here: lobularbreastcancer.org/myths-vs-fac...
- Professional golfer Angela Stanford shares the story of her mother's ILC diagnosis during National Cancer Research Month #lobularbreastcancer #NCRM #ILC
- For National Cancer Research Month LBCA highlights the critical need for dedicated research for invasive lobular carcinoma (ILC) to improve detection and treatments. Help with a gift today: lobularbreastcanceralliance-bloom.kindful.com #lobularbreastcancer #ILC
- JOIN US for a Lobular Breast Cancer Chat with Dr. Yeh, advocate Gitte Joergensen @gitteilc.bsky.social & Dr. Ulaner to discuss new metastatic ILC imaging research, the SNMMI Mars Shot program @snmmi-marsshot.bsky.social & more! Register here: forms.gle/WzWvmQn9dWhe...
- LBCA is hiring a part-time Development Associate! The position will work with a portfolio of major donors, support the Development Committee and peer to peer fundraising. Help LBCA in its mission to eradicate ILC. Deadline to apply is April 28th: lobularbreastcancer.org/lbca-develop...
- Watch Dr. Shen, Dr. Pareja and Dr. Mamtani co-directors of the new Memorial Sloan Kettering Cancer Center ILC program, present “Understanding Lobular Breast Cancer," it provides a comprehensive overview of the unique characteristics and treatment challenges of ILC: www.youtube.com/watch?v=gtZt...
- Hear from Dr. Manisha Bahl, ILC Research Grantee, about her award winning study, “Improving Detection of ILC on Digital Breast Tomosynthesis and Reducing False-Negative Rates with Artificial Intelligence" here: www.youtube.com/watch?featur...
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