Health Research Charities Ireland
Health Research Charities Ireland (HRCI) is the national umbrella organisation of over 45 charities engaged in health, medical and social care research, collectively representing over 2 million people in Ireland. www.hrci.ie
- HRCI has launched the report from the May 2025 Irish Health Research Forum: Is it time to get serious about patient registries? The event explored how registries can drive better care, stronger research & smarter policy. Find the full report, inc recommendations here! hrci.ie/may-2025-is-...
- HRCI was delighted to meet with Peter Roche T.D. and Senator Manus Boyle in Leinster House yesterday to brief them on the three key asks in our Position Paper 2025. Find the Position Paper on our website hrci.ie/hrci-positio... #HealthResearchMatters
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- Are you interested in keeping up to date with the work of HRCI? Our next newsletter will be published shortly- sign up to our mailing list to make sure you receive news, Irish Health Research Forum invitations and links to our latest publications. http://eepurl.com/gF...
- Researchers! Expressions of Interest closing dates under the HRCI/Health Research Board (HRB) Joint Funding Scheme are fast approaching. Interested in learning more? Follow this link to see the current open calls hrci.ie/joint-fundin... #HealthResearchMatters
- HRCI was delighted to attend the launch of the National Rare Disease Strategy 2025-2030 @roinnslainte.bsky.social yesterday. We warmly welcome the Strategy’s strong commitments to foster innovation in rare disease research and to establish a National Rare Disease Registry. #HealthResearchMatters
- Reposted by Health Research Charities Ireland📣HRCI-HRB Joint Funding Scheme 2026 opening soon. 📆Applications open: 1 September 2025 at 1pm ⌛Research projects of 12-36 months duration & up to €300,000 supported. Full details below including @hrci.bsky.social step by step video⬇️ Further info: www.hrb.ie/funding-sche... #HealthResearchMatters
- We're delighted to announce the HRCI/HRB Joint Funding Scheme is once again running for 2025/26. Researchers, visit our website hrci.ie/joint-fundin... to get all the info you need, including a video which goes through the scheme step by step #HealthResearchMatters @hrbireland.bsky.social
- The Irish Thoracic Society are now inviting EOI's under the HRCI/@hrbireland.bsky.social Joint Funding Scheme that supports their Research Mission. Funding up to €100,000, for projects of 24 months is available. Find further info on the call hrci.ie/joint-fundin... #HealthResearchMatters
- The latest charity to open an EOI call under the HRCI/@hrbireland.bsky.social Joint Funding Scheme is The Alzheimer Society of Ireland. Up to €240,000 is available for projects of 24 months. The closing date for receipt of EOIs is 12/9/2025. More info hrci.ie/joint-fundin... #HealthResearchMatters
- Reposted by Health Research Charities IrelandResearchers and research institutions - this online event on our latest research call may be for you! Find out more on our website below. Delighted to have colleagues from the @hrci.bsky.social joining us as part of the session as well.
- The closing date for the Expressions of Interest call from Breakthrough Cancer Research under the Joint Funding Scheme is fast approaching. Find more info on the HRCI Open Calls page hrci.ie/joint-fundin... #HealthResearchMatters
- Parkinson's Ireland have launched an Expressions of Interest call under the HRCI/ @hrbireland.bsky.social Joint Funding Scheme 2025/26. Closing date for EOI's: September 5th 2025 Find more info:https://hrci.ie/joint-funding-open-calls/ #HealthResearchMatters
- Under the HRCI/HRB Joint Funding Scheme 2025/26, the Irish Cancer Society has opened an Expressions of Interest call.The focus of the call is Translational Biomedical Research – Cancers of Unmet Needs. €300,000 is available for projects up to 36 months. Closing date:3 Sept. hrci.ie/joint-fundin...
- Muscular Dystrophy Ireland (MDI) is taking part in the HRCI/HRB Joint Funding Scheme 2025/26 & are currently seeking expressions of interest for projects that align with MDI’s Research Strategy. Find more info on the call hrci.ie/joint-fundin... https://hrbireland.bsky.social #HealthResearchMatters
- @epilepsyireland.bsky.social have launched a call for Expressions of Interest as part of the HRCI hrbireland.bsky.social (HRB) Joint Funding Scheme. Find more information on the call by visiting the Open Calls page on our website https://hrci.ie/joint-funding-open-calls/ #HealthResearchMatters
- We're delighted to announce the HRCI/HRB Joint Funding Scheme is once again running for 2025/26. Researchers, visit our website hrci.ie/joint-fundin... to get all the info you need, including a video which goes through the scheme step by step #HealthResearchMatters @hrbireland.bsky.social
- We're delighted to see the work of Dr Rebecca Ahrens-Nicklas, a gene therapy expert at the Children's Hospital of Philadelphia (CHOP), being highlighted in this piece. news.sky.com/story/baby-g... Dr Ahrens Nicklas was previously funded via the HRCI HRB Joint Funding Scheme and MSD Action Foundation
- Have you seen our video, created for the May Irish Health Research Forum event on patient registries? It brings together the voices of patients, advocates & clinicians to show how registries can transform care, drive research & improve decision-making. ➡️ www.youtube.com/watc...
- Reposted by Health Research Charities IrelandWe're celebrating the enactment of the Human Tissue Bill effective from today! This landmark legislation brings into effect a much‑anticipated “soft opt‑out” organ donation system, a milestone we've long supported. More information here: ilfa.ie/blog/ilfa-we...
- In this year’s HRCI Annual Report Member Story, Niamh Gavin, CEO of Adelaide Health Foundation, reflects on the impact we've had on AHF's approach to PPI, research funding, and the value of the HRCI members network. hrci.ie/impact/membe... #HealthResearchMatters
- Reposted by Health Research Charities IrelandThanks to @irishmedicaltimes.bsky.social for helping us get the word out about #lungfibrosis! www.imt.ie/news/lung-fi...
- Today our members @ilfa-ireland.bsky.social launch groundbreaking research which provides a pathway for a future where all lung fibrosis patients receive the care they need to live longer, healthier lives. ilfa.ie/wp-content/u... #HealthResearchMatters
- Delighted to be launching our strategy today at Leinster House! Eqitable care for lung fibrsis patients ilfa.ie/blog/strateg...
- 🚨 Exciting news from HRCI! 🚨 We’re proud to launch our **Annual Report 2024** — capturing a year of advocacy, collaboration, and impact in health research. 📖 Find the full report here 👉 hrci.ie/hrci-annual-... #HealthResearchMatters
- Are you interested in keeping up to date with the work of HRCI? Our next newsletter will be published shortly- sign up to our mailing list to make sure you receive news, Irish Health Research Forum invitations and links to our latest publications. http://eepurl.com/gF...
- There's great momentum around patient registries right now! The FoRT report, Sustaining Patient Registries in Ireland, calls for a bold, Dept of Health-backed vision for their future. A vital roadmap for care, research & policy. Worth a read 👉 cfri.ie/wp-content/u... #HealthResearchMatters
- 🌟 A fantastic day of collaboration and momentum—thanks to everyone who joined us. We can’t wait to share what comes next, keep an eye out for the Forum report later this year! #HealthResearchMatters
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- Reposted by Health Research Charities IrelandAt the Irish Health Research Forum, we're discussing the vital role of patient registries. We’ve just shown this powerful video on why they matter. @hrci.bsky.social #HealthData #PatientRegistries #RareDisease #HealthResearchMatters m.youtube.com/watch?v=1hKH...
- Attendees are now in breakout discussions—sharing insights, challenges, and ideas to shape a stronger registry landscape in Ireland. These conversations will directly inform the Forum report later in the year. Stay tuned!
- We kicked off with a powerful video featuring researchers and patient advocates setting the scene about registries. Now, a panel with rich conversation about the "here and now" of where we are with registries in Ireland.
- At today's Irish Health Research Forum, we're discussing patient registries and the vital role they play in delivering high quality research. In 2023,we published a guide on developing & maintaining a registry in collaboration with NISR & CFRI, which is well worth a read. hrci.ie/unlocking-th...
- A great crowd gathered today for the Irish Health Research Forum, diving into the big question: Is it time to get serious about patient registries?
- The Irish Health Research Forum “Is it time to get serious about patient registries?” is taking place tomorrow! 🎉 Reminder for registered attendees that the reg desk opens at 9.30am, with the event starting at 10am Check the agenda & speakers here 👉 hrci.ie/may-2025-is-... #HealthResearchMatters
- Reposted by Health Research Charities IrelandHighlighting our poster on the Research Together Initiative with Noreen Lacey at the 2025 All Island Research Culture Network conference in Belfast. Collaboration between @maynoothuniversity.ie and @hrci.bsky.social so valuable!
- Reposted by Health Research Charities IrelandGreat to meet Minister for Health, Jennifer Carroll MacNeill, yesterday. We talked about the value of embedding research in the health service & the key role of health research charities. Looking forward to staying in touch. @hrci.bsky.social @brianmartinlynch.bsky.social @roinnslainte.bsky.social
- Great to have a really constructive meeting with Minister for Health, Jennifer Carroll MacNeill this afternoon. We discussed the key asks in our HRCI Position Paper 2025. Read it here: hrci.ie/hrci-positio... #HealthResearchMatters
- Reposted by Health Research Charities IrelandPlease share this with others who may be eligible — every story matters. #RareDisorders #Rarediseases @rarediseasesint.bsky.social @hrci.bsky.social @rareireland.bsky.social
- Just launched! 🚀 Our Irish Health Research Forum report ‘Public trust in health research: are we doing enough?’ is live, and features recommendations for all stakeholders. Find the report, one page event snapshot & images from the day here: hrci.ie/nov-2024-tru... #HealthResearchMatters
- Are you delivering #PPI training? If you’d like to evaluate the effectiveness and impact of your training, the PPI Ignite Network WP1 team has developed a tool for evaluating PPI training, with survey bank, facilitator's guide and templates. You can find it here: ppinetwork.ie/resource/eva...
- The Irish Health Research Forum on May 15th will ask 'Is it time to get serious about patient registries?' This Forum event will explore the evolving role of patient registries in an increasingly connected & data-driven health landscape. Register via hrci.ie/may-2025-is-... #HealthResearchMatters
- Registration for the May Irish Health Research Forum on patient registries will be opening shortly. If you've attended the Forum before, you'll know spaces disappear very quickly! If you want to be the first to receive an invitation, please sign up to the HRCI mailing list eepurl.com/gF89rH
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- Reposted by Health Research Charities IrelandDelighted that ILFA's PPI group could support this excellent research on the unmet needs of lung fibrosis patients. journals.plos.org/plosone/arti...
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- DCU School of Comms have opened registration for 'Five years later-is Ireland ready for the next big shock?Comparing Covid-19 and climate emergency communication strategies', a seminar taking place on March 13th at the Seamus Heaney Theatre, St Patrick's Campus DCU docs.google.com/forms/d/e/1F...
- Reposted by Health Research Charities IrelandExciting event on Public & Patient Involvement (PPI) Join us in @uniofgalway on April 8th for an event exploring PPI practices across Europe. 🌍 📍 University of Galway & Online 💡 Insights, case studies & cross-border dialogue 🔗 Register now: ppinetwork.ie/event-listin...
- Today we celebrate #RareDiseaseDay! HRCI is proud to count many rare disease focused charities amongst our members and is committed to improving all aspects of rare disease research. Learn more about how we support the rare disease community here hrci.ie/about-us/our...
- Whether it's the research you fund, your support for PPI, events you organise, or other research initiatives, understanding and demonstrating impact is important and valuable. HRCI members are invited to register for our Mastering Impact workshop on March 13th www.eventbrite.ie/e/hrci-membe...
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- Happy International Day of Women and Girls in Science! Today, we celebrate the brilliant women and girls pushing the boundaries of discovery, innovation, and progress. Their contributions shape our world in ways both seen and unseen. #HealthResearchMatters
- Our goal, as reflected in our 2025 Position Paper, is to ensure that a supportive & enabling framework exists in Ireland to facilitate impactful health & social care research. With the Dail resuming tomorrow, we're asking elected reps & policy makers to prioritise 3 asks hrci.ie/hrci-positio...
- The HRCI Position Paper 2025 outlines 3 asks for elected reps & policy makers. hrci.ie/hrci-positio... 1. Resource the HSE Action Plan for Health Research, 2019 - 2029. 2. Enact legislation on research ethics committees and biobanking. 3. Increase R&D investment to the EU average of 0.71% of GDP.
- Our latest HRCI blog post examines the Programme for Government and what it means for health research. Many of the commitments are broad, leaving scope for engagement with the health research community towards practical and innovative approaches. hrci.ie/news/blog-ne... #HealthResearchMatters
- Are you interested in keeping up to date with the work of HRCI? Our next newsletter will be published shortly- sign up to our mailing list to make sure you receive news, Irish Health Research Forum invitations and links to our latest publications. http://eepurl.com/gF...
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- Reposted by Health Research Charities Ireland🎉 Was great to award Prof. Mary McCarron, @tcddublin.bsky.social as winner of the @hrci.bsky.social Research Impact Award, for her work improving the lives of people with intellectual disabilities & dementia. Research was funded by @alzheimersocirl.bsky.social & the HRB. 👉 hrci.ie/hrci-hrb-joi...
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