Wilhelmina Jenkins
Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.
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- Reposted by Wilhelmina JenkinsWe’re releasing a new State-by-State Resource Directory to help people living with ME/CFS and other disabling chronic illnesses find local and national support. Free, practical, and built for real life. 🔗bit.ly/3ZBBIAC
- Reposted by Wilhelmina JenkinsThe clock is ticking. The NIH now has 180 days to develop an implementation plan for the ME/CFS Research Roadmap. In 6 months, we SHOULD have a plan to implement the NIH’s roadmap for biomarkers, treatments & clinical trials. #MEAction partnered with #NotJustFatigue to secure this support. #NIH
- Reposted by Wilhelmina JenkinsHi everyone, I wanted to share a research study I just launched on rest, energy, & ME/CFS, open to people with ME/CFS & medical or healthcare providers who are currently practicing or conducting research & have had at least 1 patient or participant with ME/CFS. Visit restandmecfs.com for more.
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- Reposted by Wilhelmina JenkinsOur latest News in Brief summary has headlines and links to further reading for #MECFS, #LongCovid, and related news for the week of Jan. 26 - Feb. 1. Topics: News, advocacy and articles Coming events Research news and commentary & Published research www.s4me.info/threads/news...
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- Reposted by Wilhelmina JenkinsLong Covid friends— A bill in the Maryland legislature would create an R&D fund for LC—a big deal when new federal funding is stalled. The advocate behind the bill is asking for people anywhere to submit written testimony on Fri 2/6 on your experience w/LC, to say why this is needed! More info:
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- Reposted by Wilhelmina JenkinsOssoff: "This is a seismic event. This should have people across the country absolutely shook. This is a huge deal. This is an FBI raid on the Fulton County Elections office ... This is a shot across the bow at the midterm elections. He tried to steal power when he lost it in 2020."
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- Reposted by Wilhelmina Jenkins1) Todd Davenport and his colleagues from the Workwell foundation published new data on 2-day exercise testing in patients with Long Covid. These showed reductions in workload and VO2 max on the second test, similar to ME/CFS patients.
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- Reposted by Wilhelmina JenkinsThese words demand attention. “In a real sense this is holy ground, consecrated by blood spilled here. The cost is high, and so I had to be here to stand in the very place where this tragedy unfurled… I think we’re at a defining moment for our country…” ~ Rev Warnock Take a moment, so much more…
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- Reposted by Wilhelmina JenkinsScience for ME: News in Brief 19 - 25 Jan 2026 This week's research articles, media items, advocacy and other news relating to #MECFS and #LongCovid www.s4me.info/threads/news-in...
- Reposted by Wilhelmina JenkinsSenate Democrats will not provide the votes to proceed to the appropriations bill if the DHS funding bill is included.
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- Reposted by Wilhelmina JenkinsOur latest News in Brief summary has headlines and links to further reading for #MECFS, #LongCovid, and related news for the week of Jan. 12 - 18. Topics: News, advocacy and articles Coming events Research news and commentary & Published research www.s4me.info/threads/news...
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- The German ME/CFS and LC research community is stepping up its game. With funding granted and studies planned, Germany is a sign of hope as the US research outlook remains uncertain.
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- Reposted by Wilhelmina JenkinsOur latest News in Brief summary has headlines and links to further reading for #MECFS, #LongCovid, and related news for the week of Jan. 5 - 11. Topics: News, advocacy and articles Coming events Research news and commentary & Published research www.s4me.info/threads/news...
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